DS3 (almost 4) created quite a bit of concern in his doctor when he was a baby. He was failure to thrive, partly due to tongue tie and low supply but partly for unknown reasons, and quite floppy and hypotonic. He had an MRI, nerve conduction testing, and blood testing to measure CPK. All were normal. He was in EI physical therapy from about 4 months-12 months, when he was discharged because he had made huge progress and appeared generally on track. He retained head lag for a long time and was not able to to sit unsupported till about 9 months; however, he crawled at 11 months and walked at 13. He walks, jumps, runs, etc with no issues. However, he is still "floppy." Concerningly to me, he cannot sit up from prone without use of his hands, and still shows some head lag when pulled to sitting.
He seemed pretty darn normal for a long time in almost all ways but I am increasingly concerned about his tendency to be low-energy and to complain of being tired. He dropped his nap at 3.5 because he was not able to fall asleep till 9 or 9:30 if he napped. He now sleeps about 7 pm to 7 am. At worst, he goes to sleep at 7:30 and wakes up at 6:15. He always falls asleep within 5-10 min when put to bed.
He looked "peaked" to me quite a bit and will often lie on the floor and play. At the same time, he does have plenty of times when he is energetic and running around, but most 3yos I know do not sadly say "I'm tired" and lie on the floor several times a day. His endurance on easy walks is not good--I would say the most he can walk without complaining is half a mile. He is NOT a generally whiny child.
I am taking him to the ped in a few weeks. I want him tested for anemia (we are vegetarians, though he eats plenty of beans and other high-iron food). Other than that I am not sure what to ask for. Wonder if anyone has any thoughts on what we might want to pursue. Something else metabolic? Or perhaps this is just a picture of a child who has benign hypotonia? I am not even sure that diagnosis is still on his charts, BTW.
He eats very well--huge amounts, I would say. He is 90th% for height and weight (so much for FTT!) He has no other delays at all--everything is more than on track developmentally.
I should mention that there are two other factor that might be playing in:
1) He is fearful and has nightmares often--at least 2x a week. However, when he has one he is very quickly soothed back to sleep. But he has been worried about monsters on and off--sometimes very worried. He may be lying in bed awake, though he says he is not. We no longer cosleep and do not want to go back to it.
2) He has mild periodic asthma. He is not on any daily controller medicines. It seems to only pop up when he gets very sick with a cold, and is easily controlled with albuterol, but it's possible it is impacting his breathing and I don't know about it.
He seemed pretty darn normal for a long time in almost all ways but I am increasingly concerned about his tendency to be low-energy and to complain of being tired. He dropped his nap at 3.5 because he was not able to fall asleep till 9 or 9:30 if he napped. He now sleeps about 7 pm to 7 am. At worst, he goes to sleep at 7:30 and wakes up at 6:15. He always falls asleep within 5-10 min when put to bed.
He looked "peaked" to me quite a bit and will often lie on the floor and play. At the same time, he does have plenty of times when he is energetic and running around, but most 3yos I know do not sadly say "I'm tired" and lie on the floor several times a day. His endurance on easy walks is not good--I would say the most he can walk without complaining is half a mile. He is NOT a generally whiny child.
I am taking him to the ped in a few weeks. I want him tested for anemia (we are vegetarians, though he eats plenty of beans and other high-iron food). Other than that I am not sure what to ask for. Wonder if anyone has any thoughts on what we might want to pursue. Something else metabolic? Or perhaps this is just a picture of a child who has benign hypotonia? I am not even sure that diagnosis is still on his charts, BTW.
He eats very well--huge amounts, I would say. He is 90th% for height and weight (so much for FTT!) He has no other delays at all--everything is more than on track developmentally.
I should mention that there are two other factor that might be playing in:
1) He is fearful and has nightmares often--at least 2x a week. However, when he has one he is very quickly soothed back to sleep. But he has been worried about monsters on and off--sometimes very worried. He may be lying in bed awake, though he says he is not. We no longer cosleep and do not want to go back to it.
2) He has mild periodic asthma. He is not on any daily controller medicines. It seems to only pop up when he gets very sick with a cold, and is easily controlled with albuterol, but it's possible it is impacting his breathing and I don't know about it.
