ETA: When I wrote this I was thinking we'd be looking at an ASD dx. But the more I look at it, I'm not so sure. I'm not sure about anything. I just need some outside insight into the situation, please.
I've been trying to compile a list of DD1's "quirks" and things. She's 4. Last year she had an eval with a developmental ped and an OT. They complied a report and said that she has motor planning delays, hypotonia, and sensory processing disorder with sensory aversions. Said that Aspergers was a great possibility but she was too young to make a diagnosis. Said the'd send her to a playgroup therapy thing for her social issues and there were OTs in it to help. We were put on a waiting list, but they called me back last week and asked if I was still interested in receiving services for her.
A lot has changed so I'm going to request a repeat evaluation. The issues that DD had before (that are still prevalent are):
-Social anxiety- it has gotten better, she used to completely shut down. She rarely "shuts down" completely now, but the social anxiety is still very hard for her.
-Easily "overloads" from sensory input- noise, a lot going on for her visually, etc. Cleaning up a mess is extremely difficult for her.
-Sensitive to being "dirty", wipes her hands continuously during meals
-VERY sensitive to water (this has gotten exponentially worse).
-Containerizes everything- puts things in boxes, bins, purses, etc. for no rhyme or reason, so no pretend play when she does it.
-Dermatillomania- she has flare ups and skin-picks until she bleeds.
-Poor motor planning, so she's extremely clumsy and has poor balance
-Hypotonia, mild, but enough to cause struggle in our daily lives, both hers and ours.
-Spotty eye contact when talking to someone. Oddly enough, she is great at conversation, just will rarely look you in the eye.
-Control issues. She has HUGE control issues when playing with her sister or other children (just a few family-kids, she won't talk to anyone else). She is bossy, demanding, and will have a meltdown if things do not go just "as so". She manipulates her sister into doing what she wants her to do. Today I was folding laundry in my bedroom and heard my 2yo crying. My 4yo had coaxed her into licking hot sauce off a plate and was trying to get her to do it again. :( 4yo was holding the hot sauce bottle when I caught her, and was verbally encouraging 2yo to do it again.
Tattling is major but I think that's just her being 4.
-Mood issues... she seems to cycle through periods where she's okay, and periods where she's a terror. When she's in the latter "cycle", she's angry, irritable, even more bossy and demanding, and her control issues are way off the handle. She gets extremely talkative and lies a lot.
- The meltdowns. They are sheer torture for me as a parent. She has self-injurious meltdowns, and she has hit her head a few times on doorframes and furniture because it's like suddenly she can't control her body. I have to sit with her cross legged and hold her down until she is mostly calmed, because she is a threat to herself and others (she has hit myself and her sister during the meltdowns, thrown objects, etc). I feel terrible because she seems like she fears me when I have to hold her still (she yells that I'm hurting her, but she also yells that I'm hurting her when I want to hold her hand crossing the street, no matter how gentle my grip). Rambling...
- Echolalia. This is something that set off red flags in my head recently. She always repeats what I say (usually the last word in the sentence), in question form. "N, please clean up your mess." "Mess?" . "Daddy is at work." "Work?" "Would you like to eat?" "Eat?". "Mama's back hurts." "Back hurts?". She does it all the time. Not every time, but much of the time. It is very annoying which is what prompted me to google, and google took me to a PDDNOS checklist so I figured I may as well add it in as one of her "quirks" and see if it holds any value in the diagnostic process.
-She is fascinated by death, of all things. We live across the street from a church, so she frequently sees funerals. She was full of questions about death at first.. now she seems to get excited when she sees a hearse out front and will talk endlessly about it I guess it may be my upbringing, but it seems very morbid and it just freaks me out that she's so into it.
A lot of what DD does worries me. I know we need this eval and I want to go in more prepared than last time. I feel like if I were more prepared then, we wouldn't be in this position. If anyone has any insight into anything I mentioned, or can offer advice in any way, please do.
Edited by WindyCityMom - 3/22/12 at 2:34pm