They began last summer before he turned 2, he was probably about 18months old. My son was laughing and playing outside, pretending 2 race..my friends and I were cheering him on. All the sudden he ran over to me I was sitting in a chair and he laid his head in my lap, then he slid off onto the ground. We all thought he was playing bc he's very dramatic, but a few seconds later I saw that around his mouth was blue. At the same time my friend saw it to and scooped him up and said to call 911. While waiting he went unconscious about 5x in a row, he was so white we couldn't tell the difference between his face and his lips. He was limp as a noodle and unresponsive and breathing very shallow. When paramedics arrived he was fine other than the fact that his color wasn't all the way back and he was lethargic. All vitals were fine by then but we rushed him to children's anyway. They checked him out and said he was fine and had held his breath 5x in a row till he passed out.
This type of Episode happened 4 more times since then and we became concerned that it wasn't breath holding bc he didn't match the characteristics of a breath holder and so we took him to a Neurologist and had him tested for seizures or any other issues connected to his brain. Everything came out perfect although they definitely ruled out breath holding and seizures. They sent us to a Cardiologist and he has tests run on his heart as well as a sonogram, all of which came out perfect. They don't have a clue whats going on, but don't want to see him again and also recommended we stop calling the paramedics or at least wait several minutes. 3 of the last 4 episodes were fairly minor, but the 4th which just happened Friday, was very long and very bad. He was basically unresponsive, barely breathing and at times looked as though he wasn't breathing at all. His eyes were half opened and twitching back and forth...almost as if they were shaking. I kept talking to him while his dad was on the phone with paramedics bc I didn't want his eyes 2 close, it was like he was falling asleep. I was scared he would go into comma or die. Finally I started talking about things he likes and holding his feet up and bending them at the knees and he got mad at me and snapped out of it. This happened a minute before paramedics arrived. His color came back almost immediately and all vitals were fine. The blood pressure has been very low during these episodes as well but quickly after he snaps out of it w/in 5 min its back to normal.
These episodes are VERY scary, No one we have gone to has a clue whats wrong. The Episodes occur only when hes happy and playing. He knows they are going to happen so before he keel's over he comes to myself or his father. He also says his feet hurt after them. He also gets very upset if someone talks about it with in earshot.
Thanks for your help