Just sending my support desi, so sorry you guys are still having so much trouble :( Unfortunately I don't have any new revelations since we talked. I hope it gets better for you and I hope you know that whatever you do at this point you are an AWESOME mommy for doing all you've done for so far!!
I'm always on the lookout for posts like this. I was like you and no one could figure out why I was in pain. I was finally sent to a pain specialist when DS was 5 months old and she said I was having nerve pain and put me on Cymbalta and propanolol (a vaso-constrictor) and that combination was a miracle for me. It wasn't overnight but after about 3-4 weeks, I was really feeling a difference. I went off of both about 2 months ago (DS is 14 months now), because the Cymbalta was so expensive and I have had a slight return of the pain so I really do think that nerve pain is what it was for me. I will go back on it if I need to but right now, I'm ok. It's was so hard being in pain for THAT long.