or Connect
Mothering › Groups ›  April 2012 DDC › Discussions › It's a miracle that my baby is alive!

It's a miracle that my baby is alive!

post #1 of 15
Thread Starter 

I haven't written her birth story yet, but I wanted to share what a miracle my Lennon is. Turns out that her very large, healthy placenta (huge, weighing 2 lbs 7 oz) had something very rare called a velamentous insertion AND vasa previa. This is where instead of the umbilical cord being inserted into the placenta, the veins pass through the membranes first. Basically, these veins (mine had 3 HUGE veins that ran all the way across the membrane sac) are totally unprotected so they could easily be broken anytime during pregnancy or birth, or when the membrane ruptures. The vasa previa makes it even more dangerous because the veins run through the bottom of the membranes, or all the way across or something like that. According to the stats my midwife looked up and gave me, she said it's rare and occurs 1 in 3000 (but more rare to have them both, I believe) and it has a 75% mortality rate for baby. If one of the veins were to be broken, she would bleed out and die within seconds. Not even an emergency cesarean could ever have saved her. It's a 100% mortality if the vein ruptures (and does so 75% of the time).

 

I'm still researching it but if anyone's interested (I'd never heard of this and it's kind of fascinating) this is the first info I found: http://www.vasaprevia.org/vasaprevia/velamentous.htm

 

And these are the veins that ran through my membranes here:

 

P4170011.JPG

 

P4170012.JPG

You can see where the cord insertion (the whiter part) went into the membranes instead of the placenta.

post #2 of 15

Wow, that's amazing. I've heard of vasa previa before and I know that's about as dangerous as it gets. I'm impressed, and double super congrats on holding your baby!
 

post #3 of 15

wow! so glad your outcome was so good! 

post #4 of 15

wow, that is one special little girl! I am glad everything turned out great and that she is healthy!

post #5 of 15

iv never herd of it. so glad you have a healthy beautiful baby to hold!

post #6 of 15

Oh my goodness! What a shock and such a MIRACLE!

post #7 of 15

Wow!  What a special baby!  Probably good that you didn't know about it ahead of time as there is nothing that can be done to fix it. 

post #8 of 15

Incredible! 

post #9 of 15

Wow, that is crazy!  May she always be so lucky!

post #10 of 15

Holy cow--so scary!  That is what my identical twin died from (long long ago)...we were full term and best guess is she died within days/hours of birth.  This was also one of the only things we wanted to have checked at our ultrasound--insertion of the umbilical cord (even though its very rare in singleton pregnancies more common with multiples, just in case there was some genetic predisposition for it).  SOOO glad your little one was born without incident!!  Many hugs to you and her!  Those pictures are so impressive--thanks for sharing such a personal thing!

post #11 of 15

Wow! I agree, it's probably so much better that you never knew - and now, miraculously, have a healthy baby in your arms! Imagine the stress & worry if you had known all along? So happy for you & her - so much to be grateful for!

post #12 of 15

Oh how scary! And what amazing pictures :)

post #13 of 15
Miracle baby indeed. Thank you for sharing, the pictures are really interesting,

If this had been discovered earlier, would they put you on bed rest?
post #14 of 15
Thread Starter 

 

Quote:
Originally Posted by RosieL View Post

Miracle baby indeed. Thank you for sharing, the pictures are really interesting,
If this had been discovered earlier, would they put you on bed rest?

 


They would have hospitalized me at about 28 weeks and done a cesarean at 35 weeks. Even with doing that the likelihood of baby surviving is not good. But that is all they can do. There's a high risk that the cesarean itself would cause the veins to rupture. But then they are prepared to aggressively resuscitate and do a blood transfusion on the baby right then and hope for a miracle. Crazy, huh? I've been doing a bunch of reading on www.vasaprevia.org and it's really rare that an undiagnosed case turns out like mine. She is a miracle.

post #15 of 15

Wow! She's a miracle baby for sure!

  Return Home
  Back to Forum: April 2012 DDC
Mothering › Groups ›  April 2012 DDC › Discussions › It's a miracle that my baby is alive!