DD age 9.5 has been diagnosed by child psychiatrist with GAD and OCD. I feel that this is a good diagnosis, for which we are trying to get into a program for Cognitive Behavioral Therapy.
However, we feel pretty sure there are other issues. It seems futile to go to lots of individual diagnosticians who look at their area and aren't able to look at the whole child. So we are on wait lists for my DD to have comprehensive testing at CHOP (9-12 mo). I want a variety of things considered including Aspergers, SPD, ADHD, and a full psych evaluation. Major issues aside from the OCD/Anxiety are extreme tantrums/meltdowns, impulse control, freaking out when rules are not followed or anything changes, freaking out triggered by things she can't handle and doing weird body movements/sounds to feel better, some odd social issues, hysterical reactions thinking she is injured all the time, and her general pervasive unhappiness and feeling that something is wrong inside her. Our 1-year old DD2 is by nature and age unpredictable and has become a huge trigger, needing to keep them apart often.
Is there anything we should do in the meantime? We are trying to get into a new program (at CHOP) where the wait might be only 3 months but we don't yet know if we qualify. I am wondering if we should be taking her to other doctors in the meantime. It seems like everything is a wait and maybe it's better to wait for the comprehensive one. (Meanwhile, she is complaining of sore breasts, so I wonder if puberty starting could be ramping things up.)
Any thoughts would be appreciated. I keep trying things to make her better, but I just feel that if I had a diagnosis, I could start understanding and then learning how to make her life better, not necessarily through medication, but I am open to that. We did try her on Prozac for the anxiety which turned out to be a nightmare, and we had to give her Abilify to reduce the aggression that ramped up unbearably. So I'm kind of desperate to learn so I can try other options and feeling pressed by the wait time.
Is this waiting just a problem for everyone? I feel that I should have had her evaluated at age 3 when I first suspected something, instead of constantly chalking it up to her being uniquely sensitive and going through tough life issues.