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Cleft lip/palate prenatal diagnosis

post #1 of 2
Thread Starter 

We just found out at our 21 week ultrasound that our son has a cleft lip.  The pictures weren't great, but there don't appear to be other problems with the heart/organs/limbs.  We're going to see a specialist in a few weeks, but I'd like to know what other people's experiences have been with cleft lip diagnosis before birth.  Can an ultrasound detect a cleft palate or do we have to wait and see?  Were you offered genetic testing and did you choose to do it? I'm very much at a loss and would love to hear stories of how others have coped.

post #2 of 2

I hope, by now, you've been able to see someone else and get a few answers or more information! Your situation sounds stressful. I do not have personal experience with the particular diagnosis but I just wanted to offer that we have friends whose son (adopted at nearly two years of age) came home with a cleft lip and palate and they have had fabulous care through the Shriners. I hope the rest of your pregnancy is peaceful and you get to meet your little person soon!

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