My son was born 2 days ago with a cleft in his soft palette. I'm pretty confident in my ability to get good medical advice. There is a team locally that is supposed to be awesome in dealing with clefts and I used to work in a library that specialized in oral facial issues. I've also found several articles on this at Kellymom.
At the hospital the occupational therapist was great about getting us a bottle with a nipple insert valve that worked. She was also very encouraging about me getting my milk into him any way possible. Right now I'm using formula (until my milk comes in) and I'm pumping all the time. He'll do a messy sounding improper latch and seems to be liking it so we keep trying to nurse as well.
What I really want to know about is feeding. The prospect of pumping all the time for months on end saddens me.
My oldest child is adopted and was totally bottle fed. My second child is bio and we had a great nursing relationship. I know the "ease" in both sorts of feeding and it seems I'll have the uneasy traits of each form of feeding.
I guess I'd just like a little encouragement.