Felt better about editing my long rambling outpouring of feeling and felt the need to correct the name both of my child's diagnosis (meningocele is much less damaging than myelomeningocele, so that was wishful thinking) and of whether we might be candidates for in-utero surgery, which I am currently researching - you never know who else might need this info.
It appears that the information I was given so far (prenatal surgery to close the lesion in utero not warranted for a lesion covered with a cele) is wrong, as a myeolomeningocele is by definition open. However, the risks of in-utero surgery (prematurity and/or loss) may be too high for children with a sacral malformation, which tend to have much better prognoses than children with higher malformations.
Thank you everyone who offered support.
Edited by Tigerle - 5/28/12 at 12:51am