Baby girl at 5 days old - clean bill of health
About 12 hours after being sent home from ER at two weeks old. This is thurs. They said Hand Foot Mouth Disease is probably what it was, though they wouldn't know for sure..
Friday. We went back to local ER You can not see it as well in this pic but this rash was cherry red and all over her body. Her hands, palms, feet, soles of feet. every where. face..this is part of her tummy and chest.
She was inconsolable and then she just went to sleep. She had lost about a pound by this point from her birth weight despite nursing constantly.
This is just a small photo in bad light of a small area (baby chest)...
We arrived at the local hospital and right away she got priority. They kept asking me about genital warts and herpes. They began to panic a bit at the fact I hadn't done eye salve at birth and that I wasn't 100% sure I had done an internal herpes swab at my last physical. I have always been clean STD wise so I wasn't concerned.
Every one was kind, but taking pictures and seriously starting to freak me out.
DH had took other girls to go get some dinner thinking we would just get sent home and told it was a virus and quit being a nervous nelly.
They began talking of putting a catheter in her and I panicked. I asked if I could just do a urine bag and I could get her to pee. The nurse looked so sympathetic and said she would ask but it would have to be quick.
In the end I just said "fine, cath her" even though it broke my heart.
I left the room. I couldnt be there for that.
The nurse ran in a few minutes later and asked what insurance I had. At that moment I knew it was serious.
The Dr came in and said I was probably going to be transported up to Dornbechers Childrens Hospital. He was kind and gentle and began taking pics and sending it to the dr's up there on his phone.
About 10 minutes later he came in and handed me the phone and this really chipper voice was like "Hi Mrs. _____! You and Baby Girl D are going to be joining us up here at Dornbechers in just a bit and we need to ask a few questions."
More questions about open wounds, herpes, genital warts, and the like.
Man came in and began hooking her up to a heplock and getting an IV in. My heart was seriously breaking.
My head began spinning a little. At some point I asked the nurse when I would be released to go to Dornbechers cause that was a 2 hour drive away. She said they had an ambulance coming and that we werent driving.
I mentioned to two different people they had to let DH know as he was in the waiting room by now. The Dr heard this and rushed out there. He was so sweet and trying so hard to keep me calm, I could tell.
The Dr went out to the waiting room and I guess he told DH that they suspected that this could be bacterial and that it was important to attack it hard and fast and with every thing they could to avoid braindamage and the like.
DH came with the girls back there and had that deer in headlights look. We all did.
Ambulance drivers showed up. The driver got the girls each a cup of water. Found me a piece of gum cause I was seriously concentrating on how bad my breath was at the moment and kept asking people for a mint.
This was about 9pm. I had ate 1 sandwich at around 11am and had some water but hadn't ate anything the rest of the day. I was nursing a lot. I hadnt even taken a shower that day. Just so unprepared for all of this.
They loaded baby girl and I up in the ambulance at about 10.
DH was going to follow us up there in the van with the girls. We didnt have clothes or anything for them. We had driven the 30 miles to the hosp half expecting to be told to go home.
I sang in the ambulance to her. "Shalom Jerusalem" and "Revelation Song".
I had no great moment of "God will let her survive" only the acknowledgment that if she died, as a child of Him--- I would have to accept that He had His reason and purpose for this pain.
I am still accepting that, and she is alive.
I had a really bad flashback and began breaking down a bit cause the only other time I as in an ambulance was for the stillborn birth of my friends baby.
I will be the first to admit I still have some issues residing from that whole thing. Mostly cause I don't talk too much about stuff like that. I type it out or then bottle it up.
Hysteria was bubbling under the surface when I got into the ambulance for that reason alone. I was comforted and pulled it together though. I do thank my heavenly Father for that one.
The ambulance drivers prayers for me and baby girl and for my DH following (steep highway we were going on and vans tranny isnt so good and DH cant see so well at night) ...I thought that was very sweet he offered and did it
We began the long trip over the mountain to the big city of Portland. :) lol
As soon as we got to the childrens hospital we were greeted by Drs and nurses and the whole course of treatment began getting negotiated. They were absolutely awesome, kind, and competent.
In the end DH and I consented to a lumbar puncture /spinal tap, and to two kinds of antibiotics. We negotiated on the herpes viral meds (seriously...we dont have herpes but I guess this is what it looked like?) and Dr said we could start it only if we tested positive or cultures grew or something.
I think they may have tracked down my records by that time or something cause no one mentioned it again.
Right away they took her for the lumbar puncture.
There was nothing to do but weigh diapers, record nursing times, give her antibiotics, and for me to nurse while we waited for word.
Dermatologists came in. Doctors came in, Peds. nurses. CNAs..over zealous non english speaking housekeepers.
The part I obsessed on was the no co cleeping policy. I was not going to put my baby in a crib if I could help it. So I held her the entire 48 hours we were there. I fell asleep one time for two hours and the nurse (sweet heart but policy is policy!) busted me by coming in and took the baby to the crib. Baby Girl started bawling so I got up and got her as soon as vitals were done being taken.
After 12 hours of antibiotics (topical on her toes also..they looked soooo nasty and I kept asking people about them during first er trip etc) the rash seriously started regressing.
By hour 26 they said they may be able to release us at hour 36 if the cultures hadnt grown anything.
At 36 hours we were getting prepped on what to bring her back for.
Given diff theories on what could have been the problem...but told they had no real answer, appeared to be viral/hives/possibly bacterial through the toes -- but to watch her.
I have a breast absess from mastitis now and am really tired and to be honest ladies - I am starting to get really depressed. I am still nursing but I am afraid I have hit that point of being run down I am not so confident I can bounce back emotionally.
I have tried so hard to be positive. Through everything. I am starting to break, you know?
It does not help that I went to go to facebook and type something nice on all my family and friends pages that prayed or did something nice for us during the hosp ordeal and find my little sister making some really rude curse word remarks about 'effing people in her home' and it was during the time we were there for a brief visit before we headed back home. My mom placated her and said 'grin and bear it'.
I dont get it. No one was rude to her. She was just wanting to start drama and bad mouth us. Why??
It breaks my heart that I have such toxic family. They can be good as gold when they want to be (like the red curry and groceries they brought up when I was over due - remember I brag about the good stuff!) and I lap up that goodness like a starved kitten...but then the other side is the back stabbing and problem starting and drama...just breaks my heart.
I didnt need to see that.
Thank god I am the black sheep of the family, I suppose.
I still wrote something nice on her wall..and I am just thankful my beautiful girl is better.
If I can figure out how to get more pictures loaded (my sister posted those pics on her facebook so I got them from there) then I will post some of her today. She looks a lot better.
Bless you for reading.