Thank you so much for your support and good suggestion.
Actually, my baby has seen the local geneticist and neurologist regularly. But the neurologist is just so-so, and he suggested her to see geneticist in Houston. The geneticist is good, and he suggested to see neurologist in Houston first (I confused about their opposite opinions). The geneticist always thought my baby's problem is on her brain, which was damaged or did not developed well. Therefore, the brain could not send out the signal to the muscles, maybe like your son. We met him yesterday, and he referred her to Blue cross clinic in Houston, but did not mention the Dr.'s name.
My baby has speed, occupational, and speech therapists working with her every week since she was 2 months old. The simulation and therapy are considered the only ways to be helpful. They really work, and my baby is stronger. Before, I doubt and do not want to believe why doctors said on treatment to that type of problem at all. From your experience, it seems that even though you have diagnoses, no surgery or medicine could be used to cure the problem, only therapy, right?
In addition, my baby also use the stander to strengthen her legs. She also swim in tub twice a day, and moves much more in water. I feel swimming might be a very good exercise for kids with muscle problems. Maybe you can let your son try swimming.
You are a wonderful Mom. You know what is right for your son and you have always being giving him the best you can.
I hope all our kids will be happy and full of joy, no matter they are healthy or not. Anyway, I also will try my best to love her and take care of her as much as I can.
Edited by lucyl - 6/7/12 at 10:41pm