My son who will be 3 in September, is already in EI for speech therapy. So we've already got the ball rolling on that (he's in his 3rd month of basic "observation" at this point, 2x a month for 1/2hr).
Me, the pediatrician, the speech/behavioral therapists he's seen so far have never expressed any ASD concerns. It's never even been brought up. Actually EVERYone said "he talks as though he's under-water, have his ears tested".
Did. Hearing & ENT. He's fine. Not his ears.
But we just went back "home" after 2yrs, stayed 6 days with parents, my step-mother who is an NP and does WBVs all day long. SHE expressed ASD concerns. Not just concerns, but really laid it out there in a very scary way, ending with "I worry that you have a difficult road in front of you"... which has completely thrown me into a tailspin.
I've read up on ASDs since my son was born; I've monitored all the things to look for. To me, at least, he hasn't matched up with anything to worry about... except this glaring speech delay. He is very social, loves all types of activities, has friends, doesn't have fixations, doesn't tantrum (which is a bit odd in itself! :-) but he's just a happy kiddo!), no sensitivity issues, etc.
His speech... I mentioned at his 2y WBV that he had limited consonants. yes, had 100+ words, but they all sounded the same. All CGK consonants. Now nearing at 3, the consonants haven't changed At All... he puts multiple words together. He mimics, he definitely is talking to his animals/cars in fantasy and plays out a scenario, but you can't understand the words. He does NOT tell stories. He does not tell you about his day; there is very little communication back & forward. He will answer questions, he'll point out the plane in the sky, but it's still... ANE, UH-(p), EI. Nothing like... plane in the sky, mommy and I went on a plane, we saw grandpa, grandpa had dogs. Certainly nothing like that.
His new thing, which I internalize as very sad, is... he realizes that you don't get what he's saying, so he looks up at the ceiling and says... Um... and tries to say it a different way. Even makes his mouth in a different way or uses his hands. Doesn't change the way he pronounces it, but he's clearly trying. (I am thinking with the new hand-movement, that he might be a good candidate for signing... something we've never tried before, well, not since the few things as an infant).
Since my step-mother threw out the autism word, I've researched everything again as far as what to look for. I mean, I really don't want to be in denial - if she saw a concern, I'll look at it. But I'm just not seeing it. I've talked to his current daycare and his past daycare. And nothing. Nothing that ever warranted them talking to me, and nothing that is glaring that they say "well, now that you mention it, maybe".... Nothing.
- Obvious speech-related concern.
- She thought the schedule was an issue. That I feed him at 5:30 (that he does really change about 5:20 if he hasn't been fed... is that schedule? Or something I've been wondering about nutrition, like... maybe he really NEEDS something in his system by that time of day?); I still chalk that up to the fact that they were annoyed that I fed him so early and it didn't fit in to THEIR schedule. Afterall, we were at their house. It wasn't their normal routine. And... I am a bit concerned by potential change in personality (not melt-down, but just "crazy kiddo") that happens when I don't feed him as soon as he gets home from daycare.
- She found him repetitive with the words that he did say.
- Main kicker was his clumsiness... that he falls All.The.Time. And he does. Seems to be a bit better recently, but maybe that's just me. His gross motor is definitely not great, but he scored low on the behavioral test with EI on that, and it's incorporated into his IEP.
OK, incredibly long-story short.
I've not been concerned. His pediatrician ONLY referred me to EI because of me. He's already in there and THEY have never voiced anything ASD related.
What I'm looking for now is... it's not ears.
He's in EI and will be soon re-evaluated for the 3+yr group, which I'm sure he will qualify for because little/no change in the past few months.
Right now, she is the only person that's said anything ASD related.
Is there something I need to be questioning to his speech pathologist now that we know it's not ears?
Do I need to voice my step-mothers concerns? Do I need to be concerned? Is there something else I should be doing? I mean, what else is out there other than EI.... other than a full evaluation. Do you think that's warranted? Or just let them test him for the 3+yr group and see what they decide?
And what are other potential causes/disorders out there for speech-delay? If not ASD... what?
Not that I really care about causes,well, not really... but... what IS going on with him?
Thanks for any advice or BTDT experience.
Edited by JordanKX - 6/28/12 at 1:47am