New to posting here and wasn't quite expecting to be asking these kinds of questions and quite so soon as I am sure no parent of a preemie does! At 24 weeks my water broke and after spending a week in the hospital they induced labor due to elevated white blood cell count and high baby heart rate indicating I might be developing an infection. I was able to give birth vaginally to my 1lb 11oz baby boy and have been letting go of that nothing is remotely anywhere near what I wanted or expected in our childbirth/parenthood journey. We were planning to birth at a birthing center, I have never been admitted to a hospital before and see herbalists and naturopathic doctors, etc.... so any kind of medical interventions and drugs stress me out!
Our LO has been strong breathing on his own at birth and on CPAP since being in the NICU. Last week, his bilirubin level increased and they said he has colostatic jaundice that needs to be treated with meds and they continue to search for a cause with no insights from any testing they have done. They have begun to talk about doing a liver biopsy or a catscan type test (with ingesting radioactive materials), which the doctors reassure me is never done on babies this young, but they are making me really nervous with how much they mention it as a next step. His breathing also began struggling at the same time and they put him on an IMV (intermittent mandatory ventilation) through his CPAP which thankfully is not invasive like if they intubated him.
All of that to just give you an idea of how he is doing which is well given the circumstances with minor concerns at this point.
When we ask the doctors for positive milestones (like increased feeding, weight gain, breathing on his own, etc.) they are very hesitant and some doctors can't even wrap their head around our question continuing to talk about risk of infection and all the things that could go wrong. We are not unrealistic that he will have good days and bad days and still has a long time in the NICU because of how premature he is AND is there anyone who has been through this with a 25 weeker (born under 1000g and just hitting that mark recently) who can speak to positive things to look forward to in terms of his growth and development? Any websites or books to check out? The ones we have on breastfeeding and kangaroo care all seem to be about 30-32+ weekers and we're not there yet. I know there is not a lot of info because it is not usual and also that there is no one set path that a baby this small would take.
We want things to look forward to and also want to be sure we are asking good questions and advocating for things that are appropriate for his age and size in terms of breast feeding when he is ready, kangaroo care which sometimes they tell us he can't do because his breathing is not stable, and any early intervention (they gave us literature about specialists... but who would he need to see and when is not very clear...)