I want to go in fully prepared to advocate for DS1. I live in a very rural area, the nearest Developmental pedi is at a Children's Hospital 7 hours away. She is flying into my area for a week to see a very select few kids for a speciality clinic, and we are one of the few. We have one hour with her and then hour with her and his "team" to discuss. It will be myself, his old EI SLP, possibly his private SLP, and then a LCSW, who was sent out to my house to do a "psych" screening on him. She played with him for an hour and then told me that we could rule out autism because "he is too social". The pedi is new, has never done this clinic before, so one here knows what to expect from her.
DS1 is 3 as of this spring, and does qualify for services through the school district. I asked them not to attend because I have issues with some of the theories the therapists have about him. And hence the reason his old EI SLP is attending because she "gets him", she saw what I see daily with him. In therapy and during other evals, he is a model child, very few people see his behaviors. When I go through checklists for Asperger's, I can basically check every single one EXCEPT that he is highly social. In controlled, contained environments, like during therapies or evals, he WILL be an entirely different kid. I take him home and then he will line up his cars for hours, pace in circles until his feet bleed, and refuse to eat or drink for days all while not speaking.
So tips, advice, suggestions are gladly welcome. I put together a 1.5 page bulletin point, very easy to glance over, list of my concerns with him. Oh and video of him pacing and going "mute" where he will only shake his head instead of using words. I also want to go in with arguments against ruling out anything just because he does not eval well and loves adults.