My name is Lisa and I am from North Carolina. I have a daughter who is 15 and a freshman in high school at public school here in NC.
She has lupus, which is an autoimmune disease which is chronic and incurable. She usually misses about 30 school days a year due to either illness or doctor appointments/specialists etc.
It was easier to manage when she was younger, but as she has gotten older school has gotten more difficult (in terms of content to be learned, amount of content, as well as how hard it is to "keep up and catch up" when she is out sick). Also her illness has progressed, especially this year. (Lupus is "triggered" by stress, which for her has steadily increased with school. I have been holding off lupus drugs for a long time, and this year, we had to finally give in and put her on her very first immunosuppressant.)
She has gotten increasingly stressed out due to school over the past maybe 3 years. Middle school started our major problems. The schools dont use textbooks for curriculum any more, so I find it increasingly difficult to re-teach her missed material. She is on an IEP (has been for years) but the school system here has not been friendly to our situation and has not offered a single accomodation to help her keep up with school.
She is probably a "B" student, but her grades slipped this year and now she has two "D"s on her most recent report card. She is a bright kid, (not gifted, but bright enough to manage B's and the occasional A). She wants to go to college. She is so depressed that this year, I brought her to a psych, and he diagnosed her with an anxiety and depression disorder. So now we are dealing with that on top of lupus.
I joined this forum as I am looking for help from anyone else who has a sick child IN HIGH SCHOOL (sorry I am typing all caps not to yell but to emphasise-I find school issues to be MUCH differently handled in high school than in elementary-in elementary we had no problems). I need ideas on how you keep your kids up with the lectures happening in the classroom.
Here in NC we dont exactly have stellar schools. NC spends the 2nd to lowest amount on K-12 education in the entire nation. So money is ridiculous and here in my city, which is a large city in NC, the school system is "known" for just blatantly ignoring IEPs, having IEPs that are ineffective, and basically stonewalling parents and taking the stance that they dont care how many laws they break, becasue they know parents will not be able to hire lawyers to sue them. It is a VERY aggressive school system and well known in the area for this type of behavior. I am at the point after going through this for about five years that I think hiring a lawyer may be our only option. But I dont have the $10k it will cost and I am putting off the only option I have-to pull all the money out of my IRA to pay for this--to try to find any help I might be able to find out there in the cyber-universe :)
Thanks for reading this LONG post and for any ideas anyone might have. I appreciate it so much!