Positional Plagiocephaly - Page 2 « Back to Group Discussions

[KaliShanti]

You need to go to one of the centers I linked above. And please join the Facebook or baby center page. Babies of any age can have plagiocephaly and the sooner you correct it the better!!! My pedi was brushing it off too but I stuck it out, got second opinions, and got treatment at just the right time. I personally know parents who didn't do treatment be ause their pedis said to just wait or it would self correct nd it never did and they majorly regret it. You have to be real proactive!

[dashley111]

Thank you.  I called Hangar, which is the only local place, and they require a referral from the pediatrician for her to be evaluated.  I cant seem to find anywhere else locally, but Im not sure exactly what to look for.  I will try to join one of the groups.  Im feeling a bit overwhelmed right now by it...I for sure thought that the ped would just give me a referral and it would be over with. 

[dashley111]

Can you link me to any of the support groups?

[KaliShanti]

the facebook one i can invite you to if  i get your fb name. the babycenter one is http://community.babycenter.com/groups/a52465/plagiocephaly_support

I had to tell my pedi to give me a referral. Just flat out had to say I need a referral to here, please. Dont take no for an answer.

[dashley111]

I will PM you.

[dashley111]

Also, thank you for being such a huge help.  I really appreciate it!

[rainster]

Hi

I agree that you need to be extremely proactive and insist on a referral.  Too many parents listened to advice of their doctor and later regretted it. There are so many things you can do to prevent and treat flat head, especially if you act early.  Have a look at http://www.babyflathead.co.uk which has lots more information and advice

[dashley111]

Thank you.  We have an appointment tomorrow with a specialist in Seattle :)

[KaliShanti]

Good!

[dashley111]

Well, the appointment was great. They took measurements and she had a full physical evaluation. They look for a 12mm difference for helmeting and we are at 10. They took a ton of pictures (had a photographer on staff, very impressive) and we will be back in 8 weeks for more measurents and to compare head shape. She also said there is no indication of craniostinosis, which is awesome.

They were shocked by Bettie's size and had another pediatric specialist in to evaluate her growth. She was "cautiously ok" with her size and said if she quits hitting milestones to bring her in again.

I wish they weren't so far away, the whole experience and all the staff were amazing.

[KaliShanti]

So glad it went well!

[seraf]

I'm glad Bettie's head isn't so bad.

We just got back from Soren's second DO manipulation. At the first one she said his lower back was stiff and she did whatever they do and he suddenly started turning his head both ways. He also started clicking when he nurses. This appointment she said that his head looks better, the bone is still overlapping, but not as much. She did something inside his mouth and with his jaws and said she would like to see him again in 2 weeks.

I'm not sure if you've tried anything like that, but Soren did seem to start moving better when he had his first manipulation.

[dashley111]

I have not taken her in for an adjustment.  Its just too pricey unfortunately.  She doesn't seem to have ROM or movement problems, though, I think its just a preference thing. 

Glad it helped Soren :)  Was anything mentioned at his 2 month?

[seraf]

Your insurance doesn't cover them?

Soren's 2 month visit is next week. It will be discussed then.

Both my 7 pound babies have had stiffness (DD had torticollis) and both my 8-9 pounders have been fine. I wonder if life is just harder for smaller babies.

[KaliShanti]

Originally Posted by seraf 

Your insurance doesn't cover them?
Soren's 2 month visit is next week. It will be discussed then.
Both my 7 pound babies have had stiffness (DD had torticollis) and both my 8-9 pounders have been fine. I wonder if life is just harder for smaller babies.

My insurance would cover them either but they did cover a helmet luckily! And My 9 lber and 7lb 11oz babies did not have torticollis but my 8 lb 7 oz did.

[Abraisme]

Coralie was my biggest baby at 8lbs1oz and she's the only one who has torticollis.  It really helps to do the stretches and she has to sleep and nurse on one side at night or she gets stiff for a week.

Originally Posted by seraf 

Your insurance doesn't cover them?
Soren's 2 month visit is next week. It will be discussed then.
Both my 7 pound babies have had stiffness (DD had torticollis) and both my 8-9 pounders have been fine. I wonder if life is just harder for smaller babies.

[SoCaliMommy]

Harlan has it on the right side o f his head and the. Dr just to make sure he doesn't lay on that side and that it was mild. Well to me it doesn't seem like he favors that side. She said it was slight positional plagiocephaly. You can really see his when his hair is wet like during a bath.

[Becky Wheeler]

Ever since I saw this thread, I've gotten more curious about the shape of Levi's head. Since day 1, his head has measured smaller and at the ped's office, they always double check his head circumference. Does this look "normal"? Side note: the bump on top is just his hair, slicked back.

[dashley111]

Probably a good question for Kali.  Try going to the groups Kali linked me to above in the thread, there is a WHOLE LOT more info in those groups and there are a lot of people who can answer this question better!

[Becky Wheeler]

Thanks Ash!