Originally Posted by kathymuggle
Oh, I get why researchers are annoyed over it. It might be a big deal to researchers.
I am not sure it is worth dragging his name through the mud for, though, for the rest of us. It (getting blood from children whose parents agreed) hardly makes him EVIL, even if it is against protocal.
If anyone has a link to the "invasive tests" he submitted children to, particularly beyond a blood test, I would be interested in reading it. TIA!
I don't have a link (yet), but just wanted to chime in to say, I think the issue was lumbar punctures (which Wakefield was NOT the clinician who ordered them) and colonoscopies (not sure who ordered them, but my impression was that it was the clinician who ordered the colonoscopies, not the researcher). Colonoscopies back then WERE the standard of care for diagnosing inflammatory bowel disorders in non-autistic kids, but not in autistic kids, because parents were always told that there couldn't possibly be a medical problem involving the intestines, autistic children were just "like that," blah blah blah.
At least 3 things have changed since then.
1) endoscopies rather than colonoscopies are the preferred diagnostic tool for inflammatory bowel disorders
2) celiac disease/gluten intolerance are now recognized as being realtively common diagnoses even amongst NON-autistic people
3) most mainstream doctors specializing in autism care accept as common knowledge that autistic people are at increased risk for inflammatory bowel disorders, including celiac disease and/or gluten intolerance.
That said, there seems to be a concerted effort to deny the autism/intestinal trouble link.
A study published in the January, 2010 issue of Pediatrics found no such link--but they were looking back at medical records from a time when doctors routinely pooh-poohed parents who brought up their children's obvious intestinal issues.
In other words, they were looking to NOT find the problem.
There are many, many comments across the internet from parents of autistic children, who commented on the report that there was no link. Most of those comments were along the lines of, "How can I send my teenage autistic child's severe diarrhea or severely constipated stool directly to the doctors who insist that there is not link beteween autism and bowel disorders?"
From a personal perspective: our pediatrician told us that "children get tummy aches, don't over-react." (Actually, it wasn't me over-reacting; it was my son's kindergarten teacher who called me asking if she should call 911 because she'd never seen a child in so much pain during a bowel movement.)
Luckily for us, our pediatrician revised his thoughts after seeing what a gluten-free, casein-free diet did for our son's "tummy aches." (The tummy aches disappeared, and only returned when a friend unwittingly served him chicken broth that contained wheat flour.)