Originally Posted by bandgeek
I wish the school system would work with us more. They have all these "rules" about what nurses we are allowed to use for my daughter while she is there and I don't agree with it. They aren't willing to bend, so my daughter can't attend school. Their rules would basically cost the state more money, and would make it difficult for us to keep steady nurses (they would be cut from 12 hour shifts to 4-6 hours shifts and most nurses would rather do several long shifts a week) and would make it so I would have to miss work or school each and every time my daughter or the nurse had to stay home due to illness. If her home nurses could just go with her, we'd be all set. But they seem very unconcerned with my concerns so...meh.
I think the concern might be liability? We ran into this with my son's elementary school. We had "Wraparound" services, provided by the city we lived in, which were wonderful, and included an aide who came to the home to work on speech, desk work, games, etc. He was supposed to have a full-time aide at school, and DID, at first--a wonderful aide, who knew exactly what and how much he needed, and she worked with him to get him to pay attention to the teacher, not to her.
But she left to have a baby, and the school dragged their feet for nearly 2 years before replacing her--during which time, my son had major problems with one of the teachers, who thought he was "zoning out" on purpose. The school kept saying that they were in the process of hiring a replacement--for over 18 months!!
Our Wraparound Base Services Coordinator was fabulous, and came to all our IEP meetings. She got approval for us to bring a Wraparound aide to the school--and the principal said, "Oh, NO, we can't allow that--we provide our OWN aides!" (Like they hadn't stalled for over a year at that point...) Anyway, after we fussed for quite a while, she finally said that the school's liability insurance wouldn't allow for an aide from "somewhere else."
They finally told us that they'd found an aide--who proceeded to treat my son as though he were mentally challenged. Extremely mentally challenged.
We complained, tried to arrange another IEP, the principal stalled again, and I finally ended up going to the school to talk privately with the aide, to give her some background on autism, because from what we were hearing from one of the teachers, as well as the parents of a classmate, this teacher thought that autism=idiocy.
I asked the aide what she'd been taught in her training for the job, and found out that she had NO training--the school had pulled her from the cafeteria staff.
It finally occurred to us to use the "L" word ("Lawyer") with the principal. (Yes, I know, we were very, very naive.) Within a week, there was (finally) a properly trained aide in place.
Anyway, all this to say--yes, I agree with the above poster. I wish the schools would work with us more, and have the interests of the child in mind more often than $. I understand how constrained they are by budgets, and I understand how the number of special needs kids has absolutely skyrocketed, thus costing the districts more and more $.
But the schools' aim so often seems to be to try to chase special needs kids out of the public schools entirely. I lost count of the number of kids whose parents pulled them out of the school and put them in private (often Catholic) schools, just so that they could bring an aide with them instead of having to rely on poorly trained, incompetent aides in the public schools.