Originally Posted by MamaMartinka
Hello, my daughter was diagnosed with achondroplasia (the most common form of dwarfism), and we are starting EI. What are people's experiences with EI? I know they come to your home for therapy, etc. This is all so new to me, I'm not sure of the right questions to ask!
I think it differs from state to state, and even from city to city.
Do you know what kind of interventions are planned? Physical therapy? Occupational therapy? I guess you would need to know what the challenges are so that you would know what is needed. Has the doctor or doctors who signed off on EI given you any paperwork or any official diagnoses, besides for the achondroplasia, like, is there any unrelated speech delay that needs to be helped along? Or is it just physical issues?
My only experience is with autism, so I don't know if my experience will help you, but one thing I found was that, in many cases, I needed to know more than the people who were treating my child. Sometimes they weren't well-trained, sometimes they weren't very sensitive, and sometimes they kinda blindly followed what they learned in a text book instead of what my child needed.
I don't mean to sound negative--we had some FABULOUS therapists, who knew reams more than me. But schedules and personnel changed year to year, and we did have some potentially awful ones, too, and I needed to know either how to supervise them, or else how to request someone else.