Hi I'm just looking to talk with other women who have Hashimoto's thyroiditis and/ or hypthyroidism and either are or have been pregnant. I'd like to hear your experiences, and bounce some ideas around.
I have Hashimoto's, diagnosed in 2009 after a miscarriage followed by years of infertility and years of struggling to get a doctor to listen. My TSH has been well controlled for a little over a year and it was hovering around 1.5 at the time we conceived.
I really struggled with getting my PCP (who had been helping me control my thyroid) to listen to me when I requested labs and a dosage increase @ 4 weeks. My Ob/gyn was totally clueless about anything thyroid and frankly if I didn't do my own research I would have probably just given up when the 2 offices kept referring me back to each other. My TSH was 2.52 which is at the high end of normal for the 1st trimester (ref range (.25 - 2.66). The PCP wanted to leave as it is and retest in 4 weeks, but I was really concered that it would continue to rise and be too high during very critical embryonic development periods. So she referred me to an endocrinologist, and with persistence (read: calling ALL the time to see if they had a cancellation) I was able to see her at about 5.5 weeks along.
What a reassuring appt. She agreed we should try to keep my TSH under 2 during my pregnancy and increased my dosage to 100mcg from 75mcg. Then retest @ 10 weeks. I'm currently 10.5 weeks along and got my results from my TSH today an it was 3.13. I called the office to see if they'd be increasing my dosage and was told by the nurse that my results were normal. And they are, for someone who's not pregnant, after I pointed this out she asked if the doctor knew I was pregnant... Well uh yeah I sure hope she does, well a few hours later they left me a message saying that after reviewing the results the doctor wants to increase my dosage.
I find myself getting so frustrated. I would love to be able to trust that my doctors are doing the right thing, but I am finding such a profound lack of knowledge and care around Hashimoto's, hypothyroidism, and pregnancy, that I find I can't trust them. I wonder about the women who are not able to advocate so strongly and what happens to them and their babies.
Has anyone else experienced anything similar? How did your Hashimoto's pregnancy go? What care providers did you work with? Did they consider you high risk? Did you have any complications? How are your babies now?