As some of you may remember, my sweet boy was diagnosed ASD this April. We have since moved our entire family across Canada to access better services for him, leaving our lovely acreage behind for a house in a suburb of a major city so we could try to help our son while time is on our side. He just turned 3 on July 26 and is all set up to start preschool on Sept 4, and an additional ~30 hours of pivotal response training (a type of ABA) per week in our home by the end of September.
So WHY am I so apprehensive? The school is amazing, it's a classroom of 6 special needs kids and 8 NT kids with a teacher, 3 behavioral aides, in-house SLP. OT and PT. it's for 2.75 hours, 4 days a week. Sounds perfect. But I have made sure to arrange our lives so that all our kids have had a SAHP until kindergarten up to this point. I feel like I'm sending my poor unsuspecting baby out into the wild and I have no idea what will happen to him. I know some kids with ASD are fairly easy with other caregivers and don't act attached to their parents specifically... but not DS. He is extremely clingy, uses my dh or I for comfort and reassurance in new situations, is always looking to make sure we're still there. If anyone he doesn't know tries to feed him, change him, redirect him, he *freaks* and is difficult to calm after. I worry he'll think we abandoned him when we're not there if he's upset. He hasn't had even casual babysitters til now.
I'm also concerned because his main stim involves his penis. He is constantly stretching out and rolling back his foreskin, sticks objects in there (just last week he rolled his foreskin over a penny)! He pulls his penis out of the leg of his diaper and pees on his clothes if not watched every second. If we are going somewhere in the car or trying to do housework etc. we actually have to tape the legs and waist of his pants so he can't get his hands in there. He would play with his penis from waking until sleeping all day if allowed. Will the preschool be able to handle this with 14 kids in the class?! I worry about this a lot too.
I worry that they won't respect our dietary restrictions for ds either, since they're not true allergies but more like sensitivities or even preferences based on how we've see him react to certain foods. I know a lot of people, especially in the mainstream autism treatment community think that biomedical interventions or diet modifications are hogwash and I worry they will give him treats on special occasions etc without permission.
Anyhow, sorry to bombard you all with my panic state and very specific concerns, but I figured if anyone understood, it would be you all. If anyone has BTDT and can share their experiences, please do. Losing sleep over this one.