Hi, everyone- I'm posting to gather some info for my wonderful sister- hope that is OK. This may be a little long. Her older son, who is almost 4.5 years old has an initial appointment at Kennedy Kreiger in mid October. We were SO excited- despite our fears of a long wait time, she only has to wait 6 weeks. I think this has made things somewhat less overwhelming for her, because once she made the decision to try to get an evaluation, the idea of waiting and wondering for a long time seemed daunting.[
Anyway, Lucas (who is one of the most adorable, sweet, loving and awsome kids ever!) has been getting EI services since he was 21 months old (initially speech and then OT and PT added on about 6 months later). He has been in a part time special education preschool this past year (3 mornings a week) as well as in a mainstream preschool/daycare for parts of other days. My sister (who has a master's degree in special education) and the rest of us have a strong suspician that Lucas in on the spectrum (he fits the profile of autism, not Asperger's) but she (and all of us agree) that it is time for a specialist to chime in and help them find a direction to go for further treatment and intervention.
Any words of wisdom about what a KK evaluation will be like? I feel stupid because my DH and I can't give her any real idea what to anticipate. I'm a neuropsychologist, but I work in a private practice and a school and with older (school age and up) people and he's a pediatrician but aside from having strong "suspicians" generally leaves diagnosis to specialists. I feel helpless that we can't give her much advice and specific information that she is asking for, though when she has candidly asked for our professional opinions we've given them. I am relieved and so grateful that discussions about Lucas have gone very smoothly and lovingly. She is an amazing mom and an even more amazing person. I think that his needs have become more clear to her over the past year and the differences between him and peers have become more clear and the gulf has widened as the kids have gotten out of that toddler age and close to kindergarten age.
From what she's been told, he is being seen by a woman who is a developmental pediatrician, but not attached (specifically) to one of their "centers". I got the sense from what she was told that this doctor picks patients to see (don't know what her criteria is) and sees them personally, so the wait time is less. I wonder if this could be because he has current speech, OT and PT evaluations and goal reports so he doesn't need to wait for the initial evaluation to be multidisciplinary?
Don't know 100% what I'm asking, except for any info about the actual process for a 4.5 year old... and I guess also good thoughts and wishes for my sister and Lucas. I love them so much and am so proud of them all the time.