I brought the Down Syndrome chart with me to the new dr's, so we were able to track his weight gain.
I should have been more specific, when I sell he fell, I meant the percentile. He didn't actually lose any weight. Just gained very little. His weight is right around 50th percentile. He is a chubby little guy. He has rolls, even on his knees!
But, his new dr sent us to the cardiologist, even though we saw one right before we moved.
Turns out, he also has an issue (in addition to his heart defect- ASD) with the altitude difference with our recent move. The pressure in one of the chambers of his heart and in his lungs was too high. We go back this week for a re-check. If it's still high, he will need oxygen part time. Something I did not even think about at all, the altitude difference.
Pretty much, he eats the same amount of milk/formula he ate when he was 3 and 4 months old. So, we are still waking him at night for an extra feeding. We are also now working on solid food slowly, with the help of a speech pathologist. Since introducing the nightly feeding, his weight gain has picked up (going by his weight at the cardiologist). We go back to his regular dr's next week, so I should have some good numbers hopefully.
I'm not gonna lie, I don't like waking him up at night. He looks so peaceful!