Hi all -- I am mama to 2 DS ages 6 & 9, and a very soon to be DSS age 12. DSS2b was adopted at birth and has significant struggles with ADHD, ODD, LDs, extreme executive functioning issues, explosive temper tantrums, impulsivity, inability to tell truth from fantasy...it is quite the load for a little girl. (she is also a creative, warm, and compassionate girl with a huge heart!).
along with her dad (my fiancee --we've been together 2+ years) i have been working hard and putting in lots of my time and resources to help her -- i sit in on family therapist sessions, helped with recent battle to get her retested for an IEP (the old one did not even begin to address her current needs) and am dedicated to helping this wonderful child get the support she needs.
so i was flabbergasted when her dad recently mentioned, quite off-handedly, that he and his ex have known for 5 YEARS that she has FAS -- they had a diagnosis from a geneticist/pediatric dysmorphologist, plus admission from the BM that she drank throughout pregnancy. and yet have done nothing with this knowledge! i have only just started researching FAS since he told me, and the more i read, the more i see how her issues are part of the package that comes with FAS. both her parents really do not want to face this, but since this directly affects DSS as well as me and my DSs, i want to learn as much as i can.
all that aside, i am looking to connect with other parents of FAS/FAE/ARNC kids. are there any groups or forums dedicated to this? good books? bad books to avoid? resources? i am just getting my feet under me on this and would love to hear from others in similar situations.