My daughter (age 11) has Autism, epilepsy, developmental delays, and was recently diagnosed with cerebral palsy. She never sleeps. Well... maybe 1 night out of 5 she'll sleep. The others she is up screaming all night long. We have to lock her room because she doesn't understand danger and will try to escape the house, or play with things that could hurt her (knives, stove, etc). She also has a tendency to eat uncontrollably so we have to keep her locked in her room at night for that as well (though we also have locks on the fridge and pantry).
It's 6am and I am SO exhaused and just wanting to cry. I haven't slept all night because she has been up screaming and crying the entire time. She has everything she could need. She has a dry diaper, she has a comfortable temprature in her room, clean clothes on, a comfy bed, she had all of her meds (including 3 meds to help her sleep), has something to drink, and she has food in her tummy (just toast this late but you can't go 8 hours of being awake and not eat something, even if it is past bedtime). We have tried the TV on, the TV off, etc. Nothing is working. NOTHING.
This has been our lives for the last 11 years. No doctors have any solutions for us. None. We've tried melatonin, abilify, hydroxyzine, and other meds. We have tried the "Relax" type drinks that have rose hips and valerian root in them. We have her on a very consistent and comforting bedtime routine every night, which includes deep pressure and massage. We've tried aromatherapy with lavender. NOTHING works.
I am SO tired. I'm 36+ weeks pregnant and I can't be doing this. I can't stay up all night. Hubby is snoring peacefully (he can sleep through anything) since he has to get up for work in the morning. It does frustrate me that he just shuts it out and sleeps, while I try to figure out ANYTHING to get her to rest so that *I* can sleep. He helps sometimes, but apparently tonight is not one of those times, and I am just at my limit of what I can do right now.
I have to try to do some work tomorrow (today), though I don't know how I am going to be able to function. I have to take care of both my 11yo and my 6yo because they're on fall break, and we don't have anyone that can help us with them right now. I can barely keep my head up and my eyes open but every time I try to go to sleep she screams bloody murder, so it is just not worth it to even try.
Those of you with kids who have sleeping issues, how do you cope????