Neala Marie in the nicu. Prayers appreciated - Page 2 « Back to Group Discussions

[sere234]

So very glad you got to hold Neala, what a moment that must have been. I'm sending you good thoughts as your family and Neala go through this growing and healing process. Hope you are holding your healthy and vibrant baby all day long in no time!

[finnegansmom]

Congrats on the birth of your daughter.  What a terribly scary ordeal, I'm glad she seems on the mend and that you were able to hold her.

I hope she heals quickly and you are all home soon.  Hugs to you.

[Dahlea]

I'm so, so sorry mama. Our babies share a birthday-and I hope you get to be with yours soon and everything is ok.

[MrsKoehn]

Originally Posted by Bmorefarmgirl 

Thank you all so much. I got to hold her today. She made it through the warming process with no seizures, and they let me hold her for about 20 min. Omg. Bliss. My milk started to come in, so it makes me feel like there is a little something I can do for her. Just a waiting/watching game now. Weaning off meds and wires and tubes as she lets us know she's ready.
Your thoughts and prayers mean so much to me.

So happy for you! I'm sure she loved that too. It's not got to be much fun being taken from such a cozy womb to a cool bed with wires and tubes. Keep us updated and we'll keep praying all continues to go well for you both. Yeah for the milk! She's going to thrive on that. :)

[QMtwins]

SEnding all the best thoughts your way!  Congrats on the birth of your sweet daughter!

[taurustheta]

Sending you prayers and love...and congratulations on your gorgeous baby girl. Love her name, too. I wish I could be with you to hold your hand or give you a big hug. Know that you and your family will make it through this ordeal.

[Carinthia]

So glad you got to hold her!! And that milkie is a huge thing ... she will thrive on it and only you can make her special recipe!!! Glad things are moving in the right direction and we're thinking of you!!!

[Bmorefarmgirl]

Still waiting to get her MRI today, but when that's done, her vent comes out!!! And they will start feeds!!! More good news and we are feeling more hopeful. If she gets in for an MRI today, we will meet with her team Wednesday for a full report.

I'm pumping lots and she is opening her eyes and moving around some. After the MRI and vent are done, they will be able to lower some of the sedative meds and she'll be more awake too. Her EEG came off last night so we got to see her beautiful full head of hair. They took it off only 12 hours after the rewarding and we thought it would be on for 24, so that gives me a lot of hope.

Hoping my husband will get to hold her tonight. Only I got to hold her for about 15 min before.

I told the short version of her birth story to another mom in the nicu and thought to myself, "wow. That's so crazy." It's going to take a while to process all this.

Friends and family and your encouraging words are really helping me through it all.

[guen]

Thank you for taking the time to keep us updated.  I keep checking in to see how Neala is doing.  It sounds like things are going well so far and I hope they continue to! 
 

[OceansEve]

I'm so glad you got a chance to update. I checked the thread this morning hoping to see good news! My first DD was in NICU for a week beside from a difficult birth anyway. It was definitely a traumatic experience.

Talk to whoever and do whatever you need to in order to work through it. If people offer help, take it. The best way to deal with a traumatic birth experience is to get ALL the emotions out, even the really nasty emotions. If you don't have anyone IRL you feel comfortable spilling it all to there is a board on here that is good for it.

I hope the MRI today comes back great and that your DH gets to hold her tonight!

[taurustheta]

I've been checking this thread today too-- so glad to see the positive update. Continuing to think of you and your family, and will keep checking to see how you're doing. Hang in there, mama!

[sere234]

Hope Neala was able to get her MRI today and that you'll hear some news about her condition on Wednesday! Hang in there!

[Bmorefarmgirl]

She didn't get the MRI yesterday. That really took the wind out of our sails. DH and I had a breakdown in the car when we got home. The first time I've really seen him cry since this whole thing started. But she is in MRI as I type. She went down at 8:45. They said they should be able to read it today, and at least she will be extubated, so we get to hold her. DS saw her for the second time yesterday and was brave enough to reach out and touch her arm. It was so sweet. He's been the best medicine for my soul through this.

We are going to see her as soon as she's out of MRI and she gets feeds today. Hoping that she tolerates them well so she can come home ASAP.

[sere234]

Oh wow, I can't even imagine how tough it must be for you and your DH right now. I'm thinking about you! Sending lots of good thoughts and hugs your way! 

[bionicsquirrel]

Keeping you and baby Neala in my thoughts. I hope she continues to improve and that you will get to bring her home as soon as possible. Hugs to you.

[MrsKoehn]

Oh that's so precious about your son touching her. :) How old is he? Praying for you all every time I think of you! Hope it's all good news tomorrow. We're here for you girl!

[abouttobe5]

Just read this now....I am so sorry but glad to hear that she came through the warming process well.  Big hugs.  I had my first daughter in NICU with seizures and ceasing of breathing when she was born. It is a really trying, stressful, difficult time and you hold on to whatever you can to make sure she gets through OK.  You and your family are in my thoughts and I hope we hear great news soon.  

[sunmamma]

Holding baby Neala and your whole family in the light. I know this must be so very difficult. I hope you continue to find strength and comfort, and that your sweet babe will be in your arms soon! You are surrounded with love and support. Thanks for keeping us updated. Xoxo

[Bmorefarmgirl]

THE MRI CAME BACK NORMAL!!!!!!!!!!!!!!!! :joy:joy:joy:joy:joy:joy:joy:joy:joy

The resident just came up and was like, it was normal. I never even let myself imagine that moment. I am so happy and relieved.

We still have work to do weaning off the anti-seizure meds and watching for seizure activity. Working up to full feeds. But she is breathing with a nasal cannula and will get her first 5mL of breastmilk by gavage today.

DH got to hold her today and so did I. It was An amazing day after a very difficult day yesterday. Our whole family is walking on air.

Thank you so much again for your continued support. It really does help. I hope I can get around to congratulating you all on your beautiful babies too!!

[Thyme Mama]

That is WONDERFUL news mama!!!!! I am so happy to hear it! Neala, you and your family have been in my thoughts *and* prayers. So, so glad to hear this good news!