Well, it's been a long hard road and its not over yet. Just wanted to give an update. Neala is still having difficulty with her oral motor skills, so the doctors recommended, and we agreed to, getting a g-tube. She had surgery on Tuesday. The procedure went very well. She had a few rough days after the surgery, but she's been doing really awesome since then. She's coming off her reflux meds and working on getting her feeds compressed to "normal" times instead of being pumped in over a couple of hours. She's growing and adorable and these last few days have been really nice. We got to see her beautiful face with no tape or tubes attached for the first time. There still isn't a day set for getting the heck outta the nicu, but its coming. I'm hoping next week, but trying not to get my hopes up too high. She will be six weeks old next week. Having her home before Christmas would be such a blessing. We will be getting therapy for her through the infants and toddlers program to work on her oral motor skills. I still have hopes of being able to nurse her. She is getting stronger and she will suck on a pinky with some prompting and coaxing. It will just take time to develop, and with the g-tube, we can do that rehab at home instead of a hospital. It was a very tough decision, but after the last couple of days, I know it was the right decision.
Just wanted to give an update. Hope everyone else is doing well. I'll try to catch up on the forum one of these days. Happy holidays!