My dd is a HSP. She also has SPD. She also has anxiety. She went through a period of having a touch of OCD. At times I have felt that she may be on autism spectrum. I have no support whatsoever, especially since I am "mainstreaming" her. In writing this, I wonder if "hiding" it from her could be doing a disservice to the child. I am surrounded by horribly invalidating family and the cruel, cruel world. She compensates well at this point. There were some very rough years though. It is fairly smooth sailing for the most part, though.
The things that I have tried and feel may have helped:
spinning, swinging, bike riding
crashing on bean bags
deschooling, unschooling, homeschooling during the youngest years when she had lowest coping/compensating skills
the Specific Carbohydrate Diet (we did for a few months)
She is doing great. Problems come in when she is sick. I have no support during the difficult spells. Literally nobody gets it. I am so angry at all the defending I have to do. I want to crawl in a hole. The only saving grace is that she generally appears to roll along with society's demands at this point. Unfortunately, her sister is showing some signs of similar problems, so I am triggered because I am having to deal w/ it all again.
Also, the Dentist is a MAJOR problem right now. She has extensive decay. She won't sit in the dental chair. My dental insurance won't pay for special Pediatric dentistry or sedation unless she is "special needs". It doesn't make sense to get a diagnosis because of health insurance costs and the fact that the therapies she needs can be handled w/out a diagnosis. I guess I pay out of pocket, now. I am frustrated because I feel like life would be so much easier if I could have a label to put on her when these things come up. My husband doesn't understand and is in denial. Also, I know that it all gets worse when she is sick. I wonder if it is PANDAS, too. I am tired, sad, and feel defeated and alone. I am simultaneously hopeful and happy that we have come as far as we have, and proud of all that we have accomplished together under these circumstances. I wish for some validation and understanding and feel so isolated :(