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Happy to find a support group.

post #1 of 4
Thread Starter 

My son was recently diagonsed with eosinophilic esophagitis. Before the he was diagnosed we heard it was a phase, he will grow out of it, and he is a picky eater. Finally one doctor listened. I think it is when I finally looked at the Dr and said he does not eat a thing.  I was so relived that finally got some answers. I also really wanted to find a support group due to the fact that some of my family act like this is just food allergies and he will grow out of it. I snapped on one family member and informed them what it is. I think some people would have a better chance of explaining it to the wall and getting more reaction. He was diagnosed only a couple of months ago and now we are doing the elimation of the diet. He is allergic to soy, milk, eggs, and nuts. My worries are that I need to go to work and due to this disease does not show any effects physically how am I suppose to trust someone to know how important that it for his diet when some family members does not even get it.

post #2 of 4

Welcome to Mothering! smile.gif

Looks like your post was missed. Hopefully you can connect with moms facing similar issues here.

post #3 of 4
You might want to edit the title of this post to include the term "eosinophilic esophagitis" because I know that there are others on Mothering who have a child with this issue. To edit the title, click on the "Edit Thread" link above your message box.

You can also post under the allergies forum:
http://www.mothering.com/community/f/307/allergies

You could also search past threads if you want to find other members facing the same issue.
post #4 of 4

My son's allergist is suspecting the same diagnosis.  Right now, we are waiting to document more symptoms.  I don't want to subject ds to an endoscopy unless I'm convinced there's a strong possibility for EE.

 

My son makes picky eaters look good.  dizzy.gif

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