Anyone out there dealing with hip subluxation/hip displasia? DS is 3.5 years old. He has Noonan Syndrome which makes him hypotonic, and mild hemiplagic (right side) cerebral palsy (hypertonic).
He started walking around 18 months. He has loose joints in general due to the hypotonia but also issues with tightness especially on the right side in the hamstrings and achilles. He does have extremely tight hamstring muscles as well. Around that time, his physiatrist wanted to have a base x-ray of his hips and discovered he had a 25% hip subluxation on the right side and 20% on the left. She wanted a repeat xray at 2, which we got and it was much worse - it showed a 40% sublux on the right and a 25-30% on the right. She referred us to an ortho and said that if it didn't improve in 3-4 months we'd likely need an osteotomy (sp?) surgery which is horrible. We went back in 4 months and it was 'improved' again to 15% left, 20-25% right. He was prescribed a hip abduction brace to wear at night (which he does) and a follow up xray in 6 months. That was at age 3 and it showed no worsening but also no improvement. Fast forward to now (at 3 years, 7 months) - still the same and he has extremely shallow hip sockets.
The doctor said that basically by 4-5 years old, the hip sockets should be more cupped and if they are not cupped by this point, they probably won't be. DS's are shallow and he still has the mild sublux on the right. He's giving us to age 5 but said if his sockets are not more cupped by them, it's time for the pelvic osteotomy (which is what the ortho doctor at the NS conference last year said would likely be the case with Matthew). I REALLY want to avoid that surgery and it is really a scary thing to have hanging over our shoulder. Anyone have experience with it?