My youngest has had feeding issues since birth....she had a very tight lip tie that was revised (incompletely) at 10 days old and a posterior tie that we have been dealing with since 5 months...she was completely breastfed, though I think only because she was the sixth and I knew it wasn't me. We have been dealing with her choking on think liquids... including her own saliva. Her official diagnosis is either mild CP or developmental delay...depending on which Dr you listen to. I had posted about her issues on a board that I help admin on and an SLP on there was interested in her palate...she asked for pictures to see what might be going on....when I sent them to her she saw some issues with the look of her palate and her teeth....her response was that she thought there may be a submucosal cleft palate issue. I was not completely surprised because I had thought there must be something else going on....and her teeth are really jacked....they are nearly sideways ....and when I googled the pictures that came up were exactly like hers....sigh.
I don't know where to go from here really....as the SLP is in another country and cannot really advise where would be best and I am sure that our pediatrician is not going to listen( he is a great guy that has served us well for years....he doesn't freak about nonvax etc so I am happy with his idiosyncrasies...). I guess we could cold call the different doctors involved in cleft in the area...but will I sound like a crazy person questioning this and is this really something that isn't caught right away?