She has seen a specialist who helped us pinpoint a good treatment for her heavy-metal toxicity, and the treatment (mainly natural lithium supplementation) has helped considerably.
However, we still see symptoms. She's never seen a developmental ped, mainly because her early pediatricians tried to deny that she had issues and would not refer us. We didn't understand our rights and how to advocate for our child, so we simply left the practice and didn't look back. We no longer seek conventional medical care (and are healthier for it).
Anyway, since mothering parents are so well informed, I wanted to ask here what jumped outat you when you read these symptoms :
- these symptoms cycle in and out. Usually she'll have one or two "good" weeks, followed by one or two "bad" weeks. Typically there is a "calm before the storm," 1 or 2 REALLY good days, followed by a sudden downward spiral.
- good days: level mood, level personality. Reasonable, logical, satisfied, pleasant to be around. Calm, even physical presence. Attentive. Understands and follows conversation. Does well in school. Has excellent handwriting. Seeks out age-appropriate games such as checkers/chess, artwork, hide and seek, etc...and has a good attitude win or lose. Seems happy, but not "too happy," if that makes sense. Just a normal 9 year old kid.
- bad days: we call these her "off" days. She has extreme highs and lows...she can be very happy one minute, and then one little disappointment can set her off, and she crashes. She will suddenly be angry and upset, unreasonable, explosive. Her happy times seem off...like she's hiding her true anxieties with a mask, which she'll drop at any moment. She is sensory seeking...goes out to jump on our trampoline often. Watching her jump, my husband and I can tell if it's a good or bad day. Good day, she jumps like any other kid...face is happy but level, bounces are controlled. Bad day, she looks awkward and strange. She thrashes about. Swinging her head around, jerking and shrugging her shoulders, she just looks so odd. It's not "her," even though we see this behavior about as much as we see "normal" Emma behavior. Walking through the house, she bumps into the walls and furniture frequently. Almost as if she's drunk. She talks to herself. Has facial and verbal tics. Her playing is infantile...she wants to drag out all of her 20 or so "lovies" which she collects, and plays pretend with them in a very baby-ish manner, using obnoxious baby voices which have a distinct anxious tone. School performance is off during this time, her handwriting is poor and her grades suffer. Her grades are ok...nearly makes the A-B honor roll each time, but this is because she has nearly perfect schoolwork for 1 or 2 weeks , followed by a week or 2 of C's and D's...with a couple of F's mixed in.
Teachers don't really seem to understand...probably because we have no formal diagnosis to offer besides lab-confirmed heavy metal toxicity, which they aren't sure what to do with.
What diagnosis would you predict she might be given?
The 1-2 week cycling is pretty constant, and we can't pinpoint any triggers. Occasionally she'll last 3 or 4 weeks before crashing, but that is rare.