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I'm still alive

post #1 of 9
Thread Starter 

If anyone remembers my health issues I wanted to update. The last 4 weeks have been long and scary and full of change. We are moving to..somewhere. "Vacation" in MO for a few weeks for now with my dad whom i've been estranged for many years. We are in a motel right now, which isn't bc we chose to be here waiting to leave. A few weeks ago the BF broke it off and I was so weak to be able to go on.

I finally had the colonoscopy done 3.5 weeks ago. I was in the hospital for the few days before that as well. Quite literally dieing from whatever was going on. The colonoscopy revealed a mass in my low colon obstructing about 80% of the colon. It would completely close in a few months. The tests came back negative for cancer but it was never a choice for me to wait to have it removed. I had an MRI done to check out more about the mass (usually CT is done but they weren't to the point of wanting to expose me to radiation). Thats when the surgeon found out the mass could possibly be growing into my uterus. The hospital was to small to take on the extra load of a hysterectomy or of other surgery's to be done on the uterus and colon. The hospital flew me to portland for my surgery. We decided to do a CT scan to try and get more information about the mass.

Going into surgery I had to be prepared to loose about a foot of colon, many lymph nodes and then possibly....my entire uterus, baby and all.

In the end the mass WAS cancer but was negative through the lymph nodes for cancer which helped the odds of them getting it all through surgery. They were able to peel the tumor off my uterus but leave it completely intact and I lost slightly less colon that I had thought. The CT scan had showed some extra spots in my liver and upper chest area that could have been metastisized cancer; even though the biopsies had been negative, my CEA levels (a "cancer test" that's not reliable) were normal. Pretty much everything was ever normal on tests, I was borderline low in many minerals including iron but that was all. Even the day of surgery I still looked well, just "anorexicly thin". I had my first ever epidural for this surgery, which I found quite funny. I also have had the baby throughout. "He" is still here and I've had no problems, not a spot of blood. I have gained 10 lbs in a week and look like a 4th time mom but just busted up a little bit more. It has only been 2.5 weeks from surgery and I haven't had much down time. I've been worried and stressed through my hospital stay b/c my kids had to be in foster care b/c no one else would take them and we are in a hard spot of where to go now.

post #2 of 9

Oh wow, what a scary time. I'm glad they figured out what was wrong and that you have gotten treatment for it now. I'm happy for you, that your baby is still hanging in there. I hope you are able to work everything out.

post #3 of 9

Wow! That is intense.  I have been thinking about how things have been going for you.  I am so glad that they found the reason for the troubles you have been having, and although you still have a long road ahead of you, at least that part has been addressed.  It's also amazing that you have been able to gain weight and that you weren't horribly nutrient deprived...and that the baby is okay, that is amazing! 

Big hugs for what you and your family has been going through, that has to be really hard on you too.  I hope things continue to become clearer and that you get some support for you and your family. 

post #4 of 9

I'm so sorry to hear what you have been going through. I can't pretend to understand the stress and scary times it must have been for you these past few weeks and months but I'm happy to hear it seems the worst is over and  you are able to focus on healing you and your family. You are in my thoughts. Sending good energy your way!
 

post #5 of 9

Sorry to hear about your struggles.  What a tough time.  Praying for you and your children.

post #6 of 9

Wow, what a story.  I hope things continue to improve for you and baby and you figure out the living situation for your sake and the sake of your kiddos!!
 

post #7 of 9

Amazing situation!  My mouth is agape at the juxtaposition of joy and sadness in your situation.  I can't get my head around the half of your situation but I am amazed by your strength.  Keep on powering through.

post #8 of 9

Amazing what you are going through, and, yes, such a mix of joy and sadness. You and you family are in my thoughts and prayers!
 

post #9 of 9
Thread Starter 

I wasn't gaining weight from the 21st to the 3rd or so but I have been SO HUNGRY (on top of being hungry. heh) that I think I finally put on a few lbs. I moved (i am sick of moving. taking donations for dirt cheap house I WANT in tx! :P ) since I am not up to taking care of house and kids by myself. i barely am able to keep out of the way it seems but i'v'e been sleeping a lot and actually feel caught up! i don't think i've felt that for 8 yrs. I wish there was more good stuff to eat here. I have WAY TO MUCH cereal. Eating wheat feels like a betrayal almost. I've gone so long having to think about it and the pain that just being able to say "yum, that sounds good. i'm gonna eat it!" is weird. since we are living at my fathers place i'm not sure how we will go forward. there's not a lot of space for us, my youngest sleeps on a pallet on the floor next to my twin bed, crammed in the (double) computer room....it's just not the place i'm thinking "oh i'm going to bring my baby home!" :( if it's not one thing its another. OTOH i don't know when/if (some of my problems are from intense back pain, i may never not feel like passing out when i reach above my head. the low blood pressure/plummeting pressure is common for me) i'll be strong enough again to be alone for a long time and i feel cramped. i also hate living in the sticks!
 

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