I do not post or read very much on this board anymore, just so busy! But I am hoping someone here might have some insight. My DD just turned 4, she has always been "sickly" - never anything truly awful, knock on wood - reflux as an infant, allergies (mainly eggs, soy and dairy all of which I thought she had outgrown) , constant ear infections, now throat infections as she gets older, lots and lots of high fevers, catches everything that passes within a 100 mile radius etc.
About a week into school this year August 10th or so - she was diagnosed with Tonsilitis. We did 10 days of antibiotics and while the infection clearly went away she was never quite herself since then. Mostly she was tired and had constant high fevers. In June and July she was close to giving up nap but she desperately needed a daily nap suddenly and was still going to bed at a very reasonable hour. After 7 visits back to the pedi over the next 8 weeks and demanding a slew of bloodwork she was diagnosed with Mono, though the infection had cleared at this point. She seemed to be rebounding but within 8 days she caught a stomach bug (or so I thought at the time), then another bout of strep. She is still always more tired than I think most 4 year olds are. Even if she isn't sleepy-tired she is kind of lay on the couch tired. Within the past month she has had 3 bouts of waking up between 3-5 am and has between 2-4 hours of dry heaving. No vomit, no bile, no bowel movements (lose or otherwise). She just dry heaves, cries, spits (almost like she is foaming at the mouth). It is clearly very painful and exhausting but after a few hours of sleep she is completely fine again (albeit tired of course). The one complaint that started back over the summer that did not get better after the mono diagnosis has been lower leg pain. She has a hard time pin pointing and describing it and I try not to put words in to her mouth, I am not sure if it is joint pain. It has since spread to her arms second most often and once or twice her neck, hip or hands. I initially thought growing pains but this is clearly more than that. She cannot sit on her legs without complaining of pain or walk/run for long periods of time. She does a gymnastics class once a week and so far hasn't had any pain associated with that. She has fought a constant battle with redness and irritation in her vulva and sometimes on her bottom. She's taken meds and creams for both vaginitis and yeast and something just keeps coming back. She has been potty trained for over 2.5 years. Other possibly related/maybe not symptoms are that she is always cold lately and in the last week I have noticed a couple of little red bumps on her body. They go away after a day or 2 and then she gets another couple/few somewhere else. They aren't hives and I don't think bug bites. She has also started having red eyes/runny nose again like when we were dealing with her allergies a few years ago.
SO, do you think she never outgrew the allergies but they have just changed how they present themselves (when she was an infant it was runny, mucusy stools all day long. As a toddler I thought she outgrew it because that wasn't happening then realized that it was now a runny nose instead). Could allergies be causing so much inflammation that her joints hurt? We have an appt on Wednesday and I am going to ask to rerun her Igg allergy tests we did a few years ago but I don't know what else to ask for or where to go? I don't know if all of this is related but SOMETHING is going on and getting worse!
Prior to the dry heaving I was thinking perhaps fibromyalgia, now with the newer symptoms it got me started thinking about her allergies.
Any thoughts and suggestion would be very much appreciated. Any questions welcome.