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so lost and alone today

post #1 of 5
Thread Starter 

When I heard dh wouldn't be home in time for X-mas (as he normally would but plans changed:-( ), which we (kids & I since it's our thing and our culture) were looking forward to so much, I couldn't help but break down feel sad and misunderstood and cry in front of the kids.  For days already we were happily anticipating the evening family celebration to come. Didn't help for me having flu this week and not feeling ok hardly having a voice to speak. And I felt so alone. So alone for not being understood. I do so much for these kids ands this family in trying to create a warm and well-functioning household we are generally a happy family without big issues. But then you find your needs seem like nothing, your wishes seem to be selfish, while you understand others are thinking of themselves, butreally have no clue to put themselves in your shoes and understand what Iyou may be wanting, feeling, needing too. When a person feels sad he/she needs some empathy, some understanding. Dh not being there, the kids either not seeming to care or seeming helpless and clueless. And I, alone in my sadness and frustration. Together but alone.

 

What was making me even more upset was realising the youngest REALLY DOESN'T GET IT when I feel sad either. The only thing he was bothered with was the clock (his obsession lately, watching clock all the time around leaving-for-school-time (he's 6), anxiety for being late for school, teacher's reactions, at least these are my observations). With the youngest, life seems so much of a struggle much of the time. Everything needs reminding reminding reminding. So many everyday things need explaining explaining explaining. Not that this always helps in having him understand how things go, why, when, etc. You need a high frustration limit and a lot of patience for this, which you sometimes just do not have (anymore). And I need a hug sometimes too. And then he doesn't hug. I can hug him, maybe he'll let me once in a while, but he doesn't hug back. And he doesn't understand. And so there I was in my sad dip, , and him screeching and crying and almost-tantruming for seeing us getting late for school. His brother clueless in the middle of it. While mom, upset and in tears, was just not in a state to get out in public and get kids to school at the usual time... she really needed some time to get herself together, 10-15 minutes maybe... And a hug or an arm around her shoulder or a sweet word of comfort or understanding. Then realising you cannot even have that makes you feel so alone.

 

Anyway, you then you (have to) get yourself together, do the school bring job, which realyy was like a 'duty' this time, we wrre in time, but no relief.  You wish you would have had 30 minutes to first come to yourself, at home, and then leave the house when you feel better. The younger one has no understandi,ng nor patience for such situation. Also you hate being ill and alone with the kids for a whole week, this week. And it is rough to always need to be understanding, patient, deal with frustrations of others and then those of yourself on top of that, and sometimes you can feel so alone or helpless with it.

 

But I will be fine, I need to be. But it's just so difficult to deal with 'difficult' ('other') persons to walk on eggshells or be creative or understanding all the time. I wish it could just be easier sometimes. I wish others would be creative flexible and understanding towards me too or could show some of it at least.


Edited by changes - 12/21/12 at 11:50am
post #2 of 5

I am sorry you feel so alone and isolated.  grouphug.gif We have all been there. For many parents of special needs kids, self-care is one of the first things to get pushed aside in favor of every one else's needs. Well, maybe every mom, but high needs kids intensify the feelings. And it is so easy to lose connections with friends and family when you have the kind of kid who doesn't fit in smoothly.

 

When will your husband be home? I know the holidays are the roughest, but is there at least an end in sight?

 

What do you do to pamper yourself? For me, it is a hot bubble bath (sometimes after the kids are in bed - the only time I could get peace). Or guiltily ordering a new book for my Kindle, and reading all night. Yes, even though I know I have to go to work in the morning. Some nights, I know I won't sleep anyway, so I make a private party of it! partytime.gif

 

My family has gotten so small that it seems a waste to do a feast-style dinner for Xmas. We have adopted the tradition of going out to our favorite Chinese restaurant Xmas afternoon. We feel a little bit rebellious and a little bit decadent, and it adds to the fun. And no clean-up!

 

How old are your kids? Is there some special non-holiday thing you all can plan to do together this weekend? My kids and I are planning a trip to a local museum Saturday - it is usually too crowded for us (sensory issues and autism), but we are hoping it will be near empty, while everyone else in town is busy with holiday stuff.

 

My YoungSon, at 16, still doesn't hug me. I guess that will never be his style. But he asks,"How was your day?", and patiently listens while I answer. I recognize it is a bit scripted and stiff. But that is how he can show his love.
 

Please try to do something nice for yourself. I know it's hard to be optimistic in the middle of it all. But, I promise, this too shall pass. hug2.gif

 

Please check in and let us know how the day, the weekend, the holidays went. Maybe better than you expected!

post #3 of 5

hug2.gif
 

post #4 of 5
Thread Starter 

Thanks. I'm still sad. This wasn't our best day. When one thing doesn't go right, many others follow...

I feel a bit more together but still sad underneath, diappointed, frustrated. I know I need time for myself. I crave for the alone time I'm getting, but there's always so much to be done so the real me-time is sometimes just not enough or I still keep on processing things in my head. Dealing with the fighting between the kids and especially the youngest one's issues make me often feel stressed I can't help it. Dh 'knows' about the youngest's issues and at times has a hard time with those as well, but he doesn't seem to feel the stress I do since I spend more time with both children and get more of it? Still he likes to 'deny', I need acceptance, understanding, confirmation I don't know, I also need to accept not everything goes as expected or ought to be 'normal'. Don't get me wrong, being a mom is the best that happened to me, I love being a mom and I adore my kids. But I never imagined it could be so hard to live and deal with (raise) someone so 'different' and who doesn't seem to appear that different to the average person he meets but who doesn't spend tons of time with him.

Had another phonecall with dh we're fine, but I'm not happy about the holidays going 'wrong'.

And no, usually no big celebration for us, but if at least the 4 of us could be complete it would have been ok.

I hate it to have plans disappointingly changing last minute esp. when it's about a thing like X-mas.

And I'm just so tired of repeating, trying to help, having my help rejected, and of not getting through; the 'bad moments.

So thanks for all the good moments we have!

Ds also has issues in class apparently, teacher again spoke to me today :-(.

I think we will do something fun this weekend if the weather and health allows, that is.

post #5 of 5

You are not alone. This stuff is real and it's hard. Sending many hugs hug2.gif

 

Sometimes it helps if I really allow myself to feel it all - the upset, sadness, fear, all of it - instead of trying to push it away. And at the same time remember that feelings come and they go.

 

Will be thinking of you on Christmas.
 

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