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What were the symptoms of Cerebral Palsy your son/daughter experienced as a toddler? Desperate...

post #1 of 5
Thread Starter 

Hi,

I am new to this forum.  I would love to hear any stories of what the symptoms of cerebral palsy looked like for your son/daughter.  Our pediatric neurologist feels our son may fall under the umbrella of mild CP.  We are in the process of genetic testing to rule out any other possibilities.  Our son is now 20 months old and is beginning to walk.  When he first started to push his cart, he sort of dragged his right foot, which he doesn't do anymore.  Some specialists have been able to detect slight hypertonia in his hands and feet.  He struggles with balance and has always seemed sort of "stiff".  We notice a tendency for his fingers to curl under at the knuckles during certain times in the day - usually when he is crawling, or sometimes when he holds his bottle.  When he is tired, usually during storytime, he tends to fist his right hand.  Other than this, his hands and fingers function normally.  He often tends to sit cross-legged (scissor), which I have read can be a symptom of CP.  He has always been late to meet milestones (usually at about a 7 month delay).  Although he has not yet pointed at an object, but rather LOOKS in the direction of the object when asked, and is not yet able to stack blocks.

PLEASE, I would love to hear your story, even if it doesn't sound similar to our son.  What were the symptoms of your child around this age?  Does it sound like we could be dealing with CP?  We live in a small town and do not have the opportunity to meet with other parents of children with needs.  Any support would be greatly appreciated:)

post #2 of 5
Bumping for input...would love to hear these stories from mommas.
post #3 of 5

I don't have a child with CP, but one of the kids I work with does. He is 8 and your son is already doing so many things that he can't. However, in spite of his many limitation, the boy I work with is a happy kid with friends. He is currently figuring out how to be part of the pick up soccer games on our school playground from his wheel chair.

 

I'm sorry for what you are going through and the countless unknowns. I do wish you could meet the little boy I work with. Even though he has many limitations, he is such a great kid and is so happy, that I think it would set your mind at ease a bit.

post #4 of 5
My son has mild cp as well. When he was a baby, I noticed that he kept his right hand fisted alot of the time. He couldn't reach with it for too long without it starting to shake and he had trouble fully extending his arm. He didnt sit until about 9 months, he began crawling about 13 months, and he started walking around 19 months. A push toy really helped with this. He loved being outdoors but hated the grocery store - I later learned this was due to him having sensory issues. He is now six. He doesnt speak but uses a modified sign language due to finger dexterity issues. He is still clumsy sometimes and I have to watch him when he plays around kids, that he doesnt fall or get pushed down. He can get one foot off the ground when he jumps. He kind of gallops versus runs. He dies get tired after walking less than a block. He still drools but usually only when he's concentrating really hard. He is thin due to being a picky eater and sensory. He is absolutely smart and loves electronics. He's amazing and sweet and always shrprises us. He's our awesome little boy!
post #5 of 5

My now 9yo was suspected of CP & profound deafness at 8mo old.  He had lower extremity stiffness, profound developmental delays (at 9mo, he scored between 2-6mo depending on the area--and I realize that's not a 7mo delay in most areas, but it is more than 50% delayed in most areas at that age) and if you dropped a book next to him--he didn't flinch.  In retro, when he was VERY young, he wasn't happy unless he was standing (with lots of help, but he wanted to be STANDING).  He also had very little attachment to humans at all.  I was a SAHM nursing mom and he didn't even notice if I left the room.  I thought the concern about CP was a crock until I came home and started tap-tap-tapping at the keyboard only to find that his birth/my pregnancy made him a strong candidate.  :blush

 

He was neither deaf nor had CP.  He had A LOT OF PROBLEMS that included seizures (absence seizures--hard to detect but he fell down a lot and a therapist caught an eye flutter that we caught on video and the neuro confirmed), proprioceptive problems, heel-chord stiffness, sensory issues, cognitive delays, immune deficiency, a physical malformation of his heart (very mild, but caused a murmur), and a bunch of stuff.  I don't think he knew we were in the room until he was about 15mo (possibly 18mo--don't remember the age, but we both remember the first time it happened :/ ).  We started therapy and interventions before your son's age because he was much more severe, but at 20mo, I don't believe he was able to stack yet even after so much therapy and help.  At that point, I'm thinking he may have just been able to point to something if asked, but I'm not sure.  18-24mo was a big gain in development for us after a few interventions that clicked for him. 

 

Nine years, lots of research, many nutritional/supplement and therapeutic interventions almost to the day they first uttered that suspected diagnosis to me, he is a bright, social, academically advanced and physically capable (but by no means athletic) kid.  Food irritants were a HUGE factor for him and had interfered with his ability to take information in (so that he could develop in many areas) and his ability to function in general. Dietary change put the seizures to bed although we do notice he responds strongly to too much screen time.  Therapy was a BIG HELP.  We started when he was about 11months old and I think the combination of it all was what got him to where he is.  He has a mild Asperger's diagnosis but if you met him, I'm not sure you'd notice.  People generally don't.  And although he's not really an athletic kid (scrawny and bookish), he has always been in swim lessons and takes a week or two of golf each year.  He started running with dad briefly last year and his walk and run are when you see the most noticeable "difference" in him.  :wink  He just looks gawky and weird.

 

If my child had cerebral palsy, then we successfully developed his brain to work around the parts that were damaged.  I'm not sure what your child's condition is, but I would definitely do what I could to see if various things affect how he functions.  It can definitely be exhausting, and I know that after two years--I was pretty well burnt out.  But I'm not sorry for it.

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