my 11yr old son had 16p11.2 microdeletion disorder.I would just like to be able to talk to someone who has a child with the same disorder and share are experiences with.
support or help needed
- 815 Posts. Joined 2/2010
- Location: Philadelphia Area
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I too have a son with 16p11.2 deletion :) Are you part of the study? If not, I highly recommend looking into it. It really helped give us a ton of insight into the deletion and what it mean to my son. They have a conference every year and this year it's in July in Orlando. Feel free to PM me - I'm also part of some really great FB group for 16p and would be happy to direct you to them if you are interested.