support or help needed

[donna herman]

my 11yr old son had 16p11.2 microdeletion disorder.I would just like to be able to talk to someone who has a child with the same disorder and share are experiences with.

[SpottedFoxx]

Hi Donna!

I too have a son with 16p11.2 deletion :)   Are you part of the study?  If not, I highly recommend looking into it.  It really helped give us a ton of insight into the deletion and what it mean to my son.  They have a conference every year and this year it's in July in Orlando.  Feel free to PM me - I'm also part of some really great FB group for 16p and would be happy to direct you to them if you are interested.

Best wishes,

Julie