SundayCrepes, THANK YOU. I'll check out those links when I get a "spare" moment... ;-)
Re: Wearing him. Not an option at all, for either of us, unfortunately. I tried several times. He is too big for me and my back is not as strong as it needs to be, even with an Ergo. And he HATES any sort of confinement. He had a hard time learning sign language b/c he wouldn't even let people hold his hands and show him the signs. Now he's interested enough that he will try to imitate what he sees, so his language is improving. But I laugh every time the therapists suggest another "technique" that involves confining him (like for joint compression, using a weighted blanket for sleeping, even swaddling) b/c he just won't tolerate it. He would probably benefit from being swaddled at night b/c I have noticed that he wakes himself up in the car just twitching in his sleep. But he won't have it. Even hugs are tough, although he does like to cuddle so we do a lot of that for bonding/attachment.
I have taken him off gluten and all dairy. It has been a couple of months, but with some slips here and there (like the day he got into our other FS's school snack and ate Cheezits, of all things -- double whammy!). He seems to be doing much better this week. Sleeping better, pooping better for a few days. So I'll be interested to see how he does from here on out if I can keep him from contaminating himself. I'm not entirely convinced it has anything to do with gluten, but since I keep seeing things about how GFCF helps kids with sensory issues, I'll do it til I'm comfortable testing to see if it does affect him. I'd rather he have several months with us where he's feeling good before I do that though.
I didn't realize I could ask the ped for allergy testing. She is the one who referred him to the allergist, who did a skin prick test on him. (Which I have also heard is NOT the way to go, for anyone else who is reading. Apparently, the skin prick tests can actually stimulate allergic reactions in people who may otherwise not have had them, so the recommendation is to do a blood test instead.) I'll ask her for a blood test and see what she can do. I got clarification on the lactose issue from someone on his case: She said that the FFM said he had horrible diarrhea when she gave him milk, but it improved when he was off of it. Cheese and yogurt didn't have the same effect, so she continued to give him those things, that it was just the milk itself that caused digestive issues for him. But since casein can be an issue for kids with sensory disorders I'll lay off it for now regardless.
It's getting harder to feed this kid b/c he's entering that picky stage and has decided he doesn't like eggs. I can get half of one into him with ketchup, but basically he won't eat anything that's not sweet. Cooked carrots yesterday had to have agave nectar on them before he'd eat them. He'll eat fruit all day long, but with his stomach like it is, that's obviously not a good idea. He has been practically grain-free (except rice milk) for a couple of weeks and his stomach is much better, so now I'm afraid to re-introduce ANY grains. He seems to have issues with rice (cooked brown rice) but not with the rice milk. I was giving him quinoa, but that was when his stomach was still off and on and he was also getting little doses of gluten and dairy here and there. I'm going to try to reintroduce quinoa, and also come up with some better egg recipes that include other veggies and get him off his sweet streak before it becomes too ingrained.
Poor little guy. He is doing SO much better but still has so far to go. I read in his (HUGE) file that his FFM (who has fostered for several decades, specializes in drug-exposed infants, and has had over 50 kids pass through her home) said that he is the worst case she has ever seen. I'm so glad they didn't show me that before we agreed to take him. I already feel like I'm struggling -- I wasn't sure I was prepared for this. I definitely wouldn't have thought I could do it with that kind of endorsement from her.
ETA: And we're back to nasty poop! ARGH! He was doing so great the past couple of days and I thought if he made it through the next day or two maybe we'd be clear. Nope. Nasty this afternoon, out of the blue. Mucus, maybe? He's been pretty runny between teething and what I'm hoping is spring allergies.
Edited by swd12422 - 3/28/13 at 3:33pm