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A lot to take in.......

post #1 of 16
Thread Starter 

I know that I have been incommunicado for the past few months.  Things were kind of busy with the farm and the holidays.  Anyways, I'm back and a lot has happened this past week.....

 

Last Friday I had my first appointment with our midwife.  I had previously been seeing an ob, but was not totally happy.  I made the decision to have a homebirth (my partner was on board)  and then lived with it for a few months.  In the meantime I hired a doula (also a good friend) who is totally awesome at what she does.  She and my partner have really helped me stay sane and positive this week.  So back to the appointment with mw.  All good, very excited about our homebirth and everything looked great.  Last thing we did was check baby's heartbeat.  It was all over the place!  Normal, then super fast, then skipping.  We immediately went to the hospital to get it checked out.  Hubby had tried to count along and was googling like crazy.  He lost some faith in the mw we had chosen, thinking that there had been a mistake and she had overreacted.  An ultrasound (actually a few) turned up that she was right.  Baby's heart was alternating between regular rate but with an arrhythmia, an racing up to 270 bpm.

 

I was admitted to the hospital, so that baby could be monitored overnight.  So frustrating, because we had no answers and I had to stay in bed attached to monitors that could not even accurately trace baby's heart.  The arrhythmia would cause it to freak out and any heart rate that was too high or low, the machine would double or half to make it fit within the realm of normal. I'm still not sure what the point was since you couldn't tell what was going on unless you sat next to my bed and listened to the rate/rhythm.  At the nurses station the monitor made the rate look normal.

 

Anywho, Saturday, we were able to meet the pediatric cardiologist and I was finally able to come home on Sunday.  Long term looks good and baby should out grow this by 1 year of age, if not sooner.  I have to take Digoxin 3xs a day for the remainder of my pregnancy to help regulate baby's heart.  I've seen the pediatric cardiologist twice this week, while we work out the correct dose of Digoxin that will work for us.  He is so nice and very positive, which makes this a lot less scary.  I will require blood drawn regularly, to measure the levels of the drug in my system, and weekly ultrasounds to check baby's heart.

 

Needless to say I risked out of the mw's practice on our first visit, and now also out of my original ob's practice.  I have my first appointment with the maternal fetal medicine group on Wednesday, and I'm nervous about meeting a whole new group of ob's and what this might mean for our birth, now that I am labeled a high risk pregnancy.

 

Of course I am happy to switch my care in this situation and I am glad that it was caught and that it seems manageable.  I am bummed that I will not be able to try for a home birth and anxious to talk to the mfm obs to see how natural of a birth I will be likely with the new developments and now having to deliver in a hospital.  (With our first daughter we started in a birth center with a mw and had to transfer to a hospital- same one actually, so we are familiar with being flexible.)  And also bracing myself for a longer hospital stay after baby arrives and what that might entail.  Thanking my lucky stars daily (if not more often) that this isn't something worse and that we have an awesome doula who is working with us.

 

If you made it this far, is anyone else dealing with anything like this?  Being labeled as high risk with no warning?  Having to switch from a homebirth to a hospital?  How did you did you make this work?  A baby with heart issues?  Tips for helping us and our 3 year old deal with all this change.  Our toddler is pretty bonded to the baby.  She did pretty well when I was away at the hospital and she was home with her daddy.  (We were able to arrange some fun playdates for her so dh could visit me in the hospital and meet with doctors.)  We will need a plan for when the baby is born now too.

 

Thanks in advance.  om.gif (<- me remembering to breath)  Now my presence is being requested by a 3 year old pirate captain who wants to take me to her boat to nurse her five crying pirate babies... lol.gif

post #2 of 16

Wow mama! That's a lot to take in. So glad you were able to catch it and that it seems like an easily manageable issue. Sorry you risked out of the hb though, there's nothing wrong with mourning that a bit too. <3

post #3 of 16

Wow, thinking of you. You sound so calm, positive, and rational. You are doing the right thing.

post #4 of 16
Thread Starter 

So funny.  I think I had that I was "morning the loss of our homebirth" but went back and deleted it.  Taking in the bigger picture it does seem a little selfish (for lack of a better word) and not so important, though I was soooo looking forward to it.  Especially being able to have access to a tub. redface.gif  This is also why I am so super grateful to have a doula that I love on our side.  Besides being and awesome and experienced doula, she is also married to my husband's cousin (so we are kind of related) and she is my mw's apprentice.  All and all I am hopeful that despite the need for extra care, moving the birth to a hospital, and the high risk label, we can still have a natural childbirth.

 

Thanks for the kind words, firespiritmelody.  stillheart.gif

post #5 of 16
Thread Starter 

Thanks stormysky.  When I talk to friends on the phone (had to cancel a couple of dinner dates, ask for help at the farm and set up a play date with my daughter, while in the hospital) they have said similar things.  Then again, I don't tend to call people when I'm teary.  I'd be lying if I said I never lose my sh*t or am not somewhat freaked out by the whole experience.  My sister and her 1 year old will be staying with us for most of this coming year and with 3 carseats, plus adults we couldn't all fit in any one vehicle that we currently own.  We literally bought my friend's minivan the day before all of this was discovered.  The first night in the hospital, I did have a wtf we just bought a minivan, and if I lose this baby, I'm going to not only not need a minivan, but will not be able to drive it without breaking down and crying.......  Now that we have some answers and a plan, I've been able to pull myself back from the cliffs of insanity and bond again with this squirmy little baby growing inside of me.  Doing my best to keep calm and carry on.  

post #6 of 16
Oh wow. I'm so sorry that all this is happening! I'm SO glad they caught this heart issue with baby when they did! And I'm so glad they a watching you so closely.

While I don't have exp. with a baby with a heart issue. I do have exp. with wanting a natural homebirth and in turn ending up with a super high risk pregnancy! I had to have an emergency cerclage placed at 18 weeks so we didn't loose the baby and I've been on strict bed rest ever since, all in all by the time she is born ill have spent abt 7 months in bed, ive also been fighting pre-term labor since then... LOTS of dr appts/ultrasounds/testing...etc. all the things I wanted to avoid. But I am SO incredibly grateful for the advanced medical knowledge we have in this day and age that can keep our high risk pregnancies safe! I've been seeing an MFM since 18 weeks, I'm 30 now. And he is wonderful!!! Always so kind and positive... He frequently hugs me when I get teary and cry with worries of our little girl. I still see my reg OBs office as well, but I SO prefer my MFM! So I really really pray yours is as wonderful as ours is!

Sending you BIG ((HUGS))
post #7 of 16
Thread Starter 

Oh BeanBean I am so sorry.  hug2.gif  I went crazy just having to be in bed for the little over 2 days that I was in the hospital.  I actually thought at the time that if I was ever put on bed rest that I would not cope well.  

 

I know that all things considered, I still have it relatively easy.  And I agree that while this is not what I had planned for, I am so glad that it was caught and thankful that the hospital and medication is available to help deal with any complications.  I am a bit worried about all the ultrasounds (we didn't have any with dd1) but I think in this case the benefits far outweigh the risks.  (I mean a functioning heart is kind of key.)

 

I'm so glad that your MFM is so compassionate.  Since this morning's appointment turned up a normal and steady heart rate (yea digoxin!) my current major worry is that I will not mesh with the MFM department here.  Hopefully they will be as wonderful as yours, especially since I don't really have a choice of who I see at this point.  Still cautiously optimistic that I can have a natural birth in a hospital setting.  (Though of course I am trying to stay flexible and do what is best for baby, who is really the one calling the shots at this point.)  I can't wait to get more of my questions answered and have a little less unknown after my appointment next week.  (*Fingers crossed*) 

 

Now if I could just get my insurance sorted out.  eyesroll.gif  

post #8 of 16

Sorry you are having to go through this but I'm glad it was found and is manageable! Hope for the best possible outcome for you all.

post #9 of 16

Hugs, mama!  For one thing, I don't think it is selfish to mourn the loss of the birth you'd hoped for.  The way we bring our babies into this world really is a HUGE part of our (and their) lives, and I don't buy it when people out there claim that the birth doesn't matter as long as baby is healthy.  I think it's totally natural to feel like you've lost a little something, even if it is a small part of a much bigger picture.  I know I would be devastated.  Don't feel bad for that!

 

As for the arrhythmia, it sounds like you guys are definitely on top of things.  Glad you were able to catch it and that you have a plan in place.  I can't imagine how stressful it all is, though!!!

post #10 of 16

Very scary but it sounds like you are getting the best care. We don't have anything nearly that scary (twins, weight discordance, some cysts on one of Baby B's kidneys), but I see a MFM doctor and a regular OB and I love love love the MFM doctor. She takes way more time with us, explains things, answers questions, teases out what we're really trying to ask but can't quite put to words, and is very thoughtful. I hope you have a positive experience as well!
 

post #11 of 16
Thread Starter 

Thanks you everyone for all the comments!  grouphug.gif  I have been super sick from the medication I'm on for baby's heart rate.  I was pretty dehydrated and lost more than 5 pounds in one week because of all the vomiting.  Still I am hopeful that we can work out a dose that can regulate baby's heart without making me so ill.  I am now down to twice a day instead of 3xs a day.  Still nauseous, but at least I can eat again, and keep it down for the most part.  My next appointment with the pediatric cardiologist is ..... (oops just lost my breakfast shake.gif) .... on Wednesday.  I was going to say, I am hopeful that we won't have to try a different medication (there are three options) as this one is the most tried and true, has the least side effects and most importantly it is working for baby.  Also, a new medication would mean another hospital stay for observation, but at least this time we would know that I wouldn't be coming home right away.

 

I did have my first MFM appointment this past Wednesday and met one of the three Obs that will be seeing me every other week from now until I deliver.  He was ok, but I loved my nurse!  I don't think I've every gotten so many hugs from someone I just met.  So happy that I will be seeing her at every visit.  None of the 3 MFM obs that I will see actually deliver babies.  We won't get to meet those obs until d-day.  For labor and delivery we will be seen by the chief resident and one of seven Obs- who's ever on call at the time.bigeyes.gif

 

We did confirm that they will want the baby to be on continuous monitoring (hope they have long cords) and that baby will have to go to the NICU so they can monitor his/her heart and work out the necessary dose of medication if needed.  Now I am even more motivated to have a natural birth in the hospital.  Any pain medication, epidural or c-section will delay me getting down to the NICU to hold and bf my baby.  Thank goodness for our doula, Kristen.  Without her I don't know how we could cope, or hold up with all the craziness that will be going on around us.

 

At the MFM appointment, the ultrasound also showed some extra spinal fluid in the ventricals of the brain.  Normal is measuring less than 10mm and baby was at 10.5mm.  I'm not sure that it is really significant but the mfm ob immediately mentioned Downs.  Like I needed to hear even one more thing by that point.  Luckily my sweet hubby showed up shortly after that, he had taken off work early to come see me at the appointment, unbeknownst to me.  love.gif  Gosh I love him!  We declined genetic counseling and further testing.

 

Hopefully my next update will have good news!  In the meantime I just keep reminding myself to breathe.  Now off to the library with my sweet daughter.  Time for story time and to pick up some baby name books that are on hold for me.  

 

Thank you so much for giving me space to share and process all that is going on.   grouphug.gif

post #12 of 16

I'm sorry things aren't going the way you hoped and expected.  I too am looking at a hospital birth after the last 3 being homebirths due to previous complications/risk.

 

That being said, it is a real blessing that not only did you find out ahead of time, but now your baby has the best chances with medication ad monitoring, to be healthy and well!  Even if the rest of your pg went by without knowledge of this, can you imagine what it would be like if you found out during labour?  At that point you'd have a high chance of being transported for an automatic c-section!  This way you can take control of what you want and protect your baby at the same time.  It's going to be OK mama!  You can still have a great experience at the hospital with caring health care providers!

 

I pray that your side effects lessen and that baby continues to thrive!

Blessings,

post #13 of 16

hug2.gif

post #14 of 16
I will be praying for you and baby!
post #15 of 16
Thread Starter 

Thanks for all the support mamas!  I'm down to a minimal dose of the meds.  Baby is doing great!  And I'm only puking a couple of times a day.  Not fun but manageable.  Looking forward to our meeting with our doula this weekend!  Even going to our local Mardi Gras celebration (we will be in the parade too!) this weekend!  The parade doesn't start until noon and most of me being super sick is in the mornings after I take my first dose of the day, so totally doable, right?!  Heehee.  At least it will be a good distraction.  :)  Have a great weekend everyone!

post #16 of 16

Glad to hear things are improving!

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