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CHD Mamas?

post #1 of 4
Thread Starter 

I know I can't be the only "1 in 100" mother out there. Stand up and be counted! What are you doing for CHD awareness week? How is your LO doing?

post #2 of 4

my 15 month old had his first open heart surgery a year ago, on Valentine's Day, when he was 3 months old. We were all hoping, his cardiologist included, that it would be a "one and done" fix. But now it looks he'll need another open heart surgery this year. He has limb differences, too, which are his more "obvious" birth defects, and I almost forget sometimes about his heart. I'm dreading another surgery.

post #3 of 4

My 2.5 year old son, Apollo, was born with a double aortic arch. He had  two heart surgeries in two different states last year and a g-tube placed. He is doing well (though still struggles with his health). I didn't do anything special for CHD  awareness week, but I blog about his heart regularly on my family blog. You can read the short version here: Apollo's Story.

post #4 of 4
Quote:
Originally Posted by rhombus View Post

my 15 month old had his first open heart surgery a year ago, on Valentine's Day, when he was 3 months old. We were all hoping, his cardiologist included, that it would be a "one and done" fix. But now it looks he'll need another open heart surgery this year. He has limb differences, too, which are his more "obvious" birth defects, and I almost forget sometimes about his heart. I'm dreading another surgery.

My son needed two heart surgeries for his defect that only requires one :( I have yet to meet a parent who's child needed two to fix a double aortic arch. Heart surgery sucks.

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