Hi I have a 3 week old daughter that I suspect has this. We just sent her blood for a FISH q22 test and should receive results on Tuesday. This wait is killing me. The issues she has are recessed jaw, wide spaced eyes, double hair whorls, feeding issues, large space between big toe and next one, widely spaced nipples, low tone in neck, trunk and shoulders, etc. But those are the just the ones I have noticed. Oh and she is overly sleepy! I know I shouldn't complain, but it is excessive and worries me.
I have been reading through old posts and saw a few from momtotwoboys and momtoalexissarah...I think? Does anyone know if they are still around? Or are there other parents who have traveled this road?
I am sick with worry and falling apart. How did this happen? We went from being ecstatic to devastated in just a couple weeks. The anxiety is almost unbearable.
Thank you for your time.