Our Sweet Baby has a VSD « Back to Group Discussions

[Tenk]

Ventricular Septal Defect or more commonly a hole in his heart.  The Dr said it's moderate sized and gave us a 30% chance of it closing on it's own and otherwise baby will need surgery to repair/patch the hole between 4-6m.  And even though our odds have been 1/1000 of Down's during our NT scan and blood work and again at the 18w blood work they have changed our odds to 5% that baby has Down's and I did the MaterniT21 test yesterday to find out for sure.

[kitteh]

Oh Tenk, I'm so sorry. This must be such a stressful time for you. I'm sending good healing vibes your babe's way and hope that you receive good news from the MaterniT21 test.

[dayiscoming2006]

I hope you get good news too from the other test. Sorry to hear your baby has a heart defect. Very sad, but I hope for everything to turn out well for you all in the end no matter what.

[kitteh]

I know someone whose daughter was born with a hole in her heart, and they did have to go through with the surgery. It was difficult and harrowing for the parents (as I'm sure anything out of the ordinary would be when it is happening to your precious baby) but the operation went really well and she is now a beautiful, happy, active almost-two-year old. I hope that your baby's heart heals before birth. If it doesn't do you think that you could find a support group of other parents who are going through or have already gone through the same thing? My friends did that and they said it really helped them get through it.

[spotty4]

Oh goodness, Tenk!  Sending healing heart vibes to your little one.  lub-dub.

[JNajla]

Oh Tenk, that must have been difficult news to hear.  Please keep us posted.  Sending you positive energy.  

[here we are]

Thinking of you..

[veggieviola]

Tenk, so sorry to hear this.  A cousin of mine (who does have DS) was born with a small hole in his heart, which actually did close up on its own.  Sending you healing thoughts, and wishing the best for your little one.

[Tenk]

I appreciate all the kind words everyone.  I think DH is more worried about babe having DS than he is about the hole.  He said we can handle heart surgery and while we CAN handle DS it would be harder than a minimally invasive heart surgery.  With this size hole it would be more of a patch versus a full on open heart surgery.  At least for now.  After the appointment on Tuesday we'll know more about the actually size of the hole and the steps we have to take to ensure safety of baby.
 

[kitteh]

And when might you know more about the chances for DS?

[Tenk]

We should have the results by next Friday ... seems like FOREVER
 

[JNajla]

Tenk-  what was the outcome with the results (or maybe you posted somewhere else?).  Hoping that everything is healthy and ok. 

[Tenk]

Oh, sorry, thought I updated.  Baby does not have Down's but still has the hole and we'll find out more after a scan on May 7th :)

Thanks for asking!!!