Originally Posted by AnnieA
I totally get that but I also don't like being uncomfortable! I don't know how I'm going to handle things when I get to that point because I don't like hormones. Ugh. Sorry you're already there MW.
AFM, Ava has an appointment tomorrow morning with her geneticist. One of the genetic counselors called the other day to talk to me before the appointment because they have a new program that will let us do the genetic testing they are recommending and only cost us $100 out of pocket. We haven't moved forward with it so far because our insurance has been denying it. I told him that I feel like we need to discuss it further with her geneticist because I want a better read on HOW this information would change Ava's day to day life. If it won't make a big difference, then I'm inclined to wait until the next time she has an interventional cath and just piggyback the bloodwork on to that bloodwork. The only thing there is we don't know WHEN she will have her next interventional cath. It could be in six months or it could be in two years. So is it ok to wait that long?
When I got off the phone with him, I just started bawling. Ava's heart stuff is one thing but this other genetic stuff, it's really hard for me to handle. As she's getting older, it's starting to become more apparent to me that she looks different. And I hate that there's the possibility that she's going to struggle throughout her life because of this. She's also not on the same level as some other toddlers her age. In my July MDC DDC on FB, the other mamas recently posted stuff that their babies are doing. And Ava is so not there. Their babies are counting, saying colors and shapes, speaking 3 word sentences, etc. Ava is NOT there. And so we're back to the question of early intervention. From all I've seen and read, speech intervention at this age is mostly fun and helpful. And a lot of the work is done at home with the parents. I've been working with her at home but it may be good to have some more "formal" instruction for me to help her since I'm not a speech/path. The genetic counselor said we can talk to the geneticist about having Ava seen by a developmental pedi to see if she does in fact need intervention at this stage.
Please send good thoughts for us tomorrow mamas. This crap is stressing me out.
Oh mama *hugs* It doesn't seem to me like she's 'different' or delayed, but trust your instincts. I agree that if you're worried, it's worth getting a consult and seeing what the intervention would be like. I know a few kids who have gone through early intervention, and yeah, they did seem to treat it more like playtime than a rigorous teaching time.
I'm so sorry you have to deal with this! You're a strong mama, don't ever forget that. God has given you Ava because YOU are strong enough and loving enough and perfectly fitted to be Ava's mama.
I don't have anything terribly interesting over here. We went for Ten's last "catchup" needle on Tuesday, and decided to get the men C at the same time as her third round of adacel. She'd done well with the first two rounds, and the Men C has a low side effect rate, so i felt fairly confident doing that. Which... would have been fine. Except that as the ped was pulling the first needle out, Tenley turned, and so the needle basically jerked sideways under her skin :/ She's got a massive welt thrre, exactly where the needle was dragged. I'm confident it has nothing to do with the meds, just the needle, but I still feel horrible. She doesn't seem to notice, but it looks so bad. :(
My best friend finally went public with her pregnancy. I feel like I'm running such a thin line between trying to give her info about natural birth and AP and be supportive, but also not pressure her too much and seem judgemental. This is the same friend that her and her mother commented in favor of spanking on one of my FB posts. :/
One of my other friends from high school got induced this morning. She's not even due til the 19th. It sounds like she's coping alright, but blah. She was saying she was so worried about it, since she hadn't been induced with her first. And I just wanted to scream THEN DON'T DO IT!! Bah.
Day completely off tomorrow with no commitments, and then a babywearers meeting on Friday morning, and then no commitments again until next week, maybe. I don't have my schedule yet. It's been really nice to have this whole week off. DH starts his official shift rotation on Good Friday, and from then on he'll be working 7am-7pm, 7am-7pm and then 7pm-7am, 7pm-7am, and then four days off, rinse and repeat. I don't think it's really sunken in yet!
Got my hair done today. Haven't finished processing yet. That makes it sound worse than it is, really, but just bah. I'm disappointed.