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30 min seizure after pentacel vax - Page 2

post #21 of 37
Thread Starter 

Jennyanydots, thanks for your kind words and sentiment.

 

i wish i could go back in time and not allow my daughter get that damn shot. i do think i saved her from more damage by not allowing it when she was just 2 months, 4 months, etc. my older dd got the same shots after she turned 2 and was ok. but not every little body and immune system can handle it. i respect every parent's right to decide what is best for their family, kids. however, my advice, if anyone cares, from here on out is: don't do it.

 

i may reconsider when vaccinations are made 'green'.
 

post #22 of 37
Thread Starter 

the mayo clinic will not discuss the vaccination as related to DD's epilepsy. i was scolded on the suffering of little ones who get diseases that could have been prevented through vaccination.

 

my husband and i bought a new video monitor so that we can be sure our 2 year old is safe at night. and maybe that will help us get some sleep, too (maybe, but not likely for this worry wart). our local peds neurologist refuses to give us documentation that the video monitor is a medical expense. (google: SUDEP)

 

F*#$ all this. i hate all these doctors so much right now. no compassion, no understanding. we are almost $20,000 into this since february. (medical expenses)

 

going to an integrative DAN doctor next week. we are paying full cost out of pocket as insurance covers nothing. maybe that means he is not a whore for big pharma.

 

please excuse my language. angry. banghead.gif

post #23 of 37

summersmama, I am so sorry you are dealing with this. Healing vibes to you LO.

post #24 of 37

I am not surprised the Mayo Clinic has given you this kind of treatment. I've had different family members who were wrongly treated at  both Duke and Johns Hopkins, and I am still having a hard time getting past the anger. Just because an institution is considered to be one of the "best" does not mean it actually is.

Wow, vaccines are only capable of good in this world. They are completely free of blame when it comes to reactions, especially since doctors are so reluctant to hold them responsible for anything except disease eradication. I hate this system so much, and I am so angry for you!

Sorry you are going through this, but hopefully you will find help with a good integrative doctor.

post #25 of 37
Quote:
Originally Posted by summersmama View Post

the mayo clinic will not discuss the vaccination as related to DD's epilepsy. i was scolded on the suffering of little ones who get diseases that could have been prevented through vaccination.

 

my husband and i bought a new video monitor so that we can be sure our 2 year old is safe at night. and maybe that will help us get some sleep, too (maybe, but not likely for this worry wart). our local peds neurologist refuses to give us documentation that the video monitor is a medical expense. (google: SUDEP)

 

F*#$ all this. i hate all these doctors so much right now. no compassion, no understanding. we are almost $20,000 into this since february. (medical expenses)

 

going to an integrative DAN doctor next week. we are paying full cost out of pocket as insurance covers nothing. maybe that means he is not a whore for big pharma.

 

please excuse my language. angry. banghead.gif

Sadly your story is fairly typical when it comes to vaccine injury. You are on your own. I am so sorry you have to deal with this with no support from the medical community - and to have a doctor lecture you about diseases? shameful. I hope the DAN doctor will be able to help your LO. and you have every right to be angry!!!!

post #26 of 37
i have since revisited the 'pentacel' literature, and indeed they do refer to seizures occurring within 3 days of the vax as a side effect. i find it disconcerting that no one seems interested in this explanation.
 

Just because it's rare doesn't mean it's not happening to your child. Trust your instinct, and keep looking for doctors who will listen to you. We 'fired' our pediatrician for always badgering us about vaccinating our daughter; our current family physician doesn't condescend to us when we say we're skipping a vaccine here or there. Of course, she has three kids, and our pediatrician was childless... 

 

Somewhat tangential, but a med school friend of mine informed me that med school students consider pediatrics the 'easiest' route to take for a career in medicine. Think about that the next time some pediatrician brushes you off. This was the student at the low end of the curve.

post #27 of 37

Thinking of you……healing vibes, and a money fairy  goodvibes.gif

post #28 of 37
Thread Starter 

thank you, everyone. i rant and vent, and thank the universe that there are understanding, empathetic folks.

feeling better, calmer. looking forward to integrative m.d. appointment.

post #29 of 37
Thread Starter 

so happy we went to see the integrative m.d., also a DAN doctor. we had a 2 hour consult with him, where we discussed bacteria, virus, disease, the immune system and vaccines. he shared a lot of research and most important, he LISTENED to our story. he validated our experience. he talked of the many mothers and fathers who walk through his doors with similar stories, about how their children were just fine, and then a vaccination...

he told us we were in all likelihood lucky that we had not allowed more shots at a younger age for our DD.

so now we are doing a battery of lab tests, urine and blood, checking for everything that might be useful or problematic, depending upon your perspective. we will have to wait a few weeks for all the results to come in, at which time we will have another consult and a treatment plan will be outlined.

 

overall i was very impressed with his knowledge, and also his humility. he knew his stuff, but was quick to point out that no doctor is god, no doctor can guarantee that a vaccination or medication or treatment is safe for everyone. he encouraged me to read and research, advocate for my child and follow my instincts.


Edited by summersmama - 5/19/13 at 9:13pm
post #30 of 37
That's awesome, summersmama! I'm so glad you found a good dr you can talk to who will actually hear what you're saying without dismissing you. I hope he's able to provide some help and offer some good healing therapy.
post #31 of 37
Quote:
Originally Posted by summersmama View Post

so happy we went to see the integrative m.d., also a DAN doctor. we had a 2 hour consult with him, where we discussed bacteria, virus, disease, the immune system and vaccines. he shared a lot of research and most important, he LISTENED to our story. he validated our experience. he talked of the many mothers and fathers who walk through his doors with similar stories, about how their children were just fine, and then a vaccination...

he told us we were in all likelihood lucky that we had not allowed more shots at a younger age for our DD.

so now we are doing a battery of lab tests, urine and blood, checking for everything that might be useful or problematic, depending upon your perspective. we will have to wait a few weeks for all the results to come in, at which time we will have another consult and a treatment plan will be outlined.

 

overall i was very impressed with his knowledge, and also his humility. he knew his stuff, but was quick to point out that no doctor is god, no doctor can guarantee that a vaccination or medication or treatment is safe for everyone. he encouraged me to read and research, advocate for my child and follow my instincts.

Great!

post #32 of 37
Thread Starter 

update:

after many urine and blood labs, the results are in. my DD has high levels of mercury, lead and cadmium in her body. OMG! scary. she also is very low vitamin d (common for wisconsin), too low zinc/too high copper (supposed to be balanced?), low calcium, low b6, low vitamin c, low carnitine. some of these results are evidence of inflammation in her brain. she also has an overgrowth of fungus/yeast in her intestines, which contributes to high oxalic levels (dr. says result of antibiotics). SO, i am trying to digest, research all this, much of beyond my scope of understanding.

we are adding more supplements, in addition to those she already started (probiotic, omega 3, multivitamin), as well as short course antifungal and carnitine prescriptions.

and the really big news: we are starting a 6 week elimination diet on monday. oh boy. i think this is going to be a big challenge for our family. so i am also researching this like crazy to prepare.

we are including our older DD in this treatment (minus the prescriptions).  also, the dr. is hopeful that once we get our DD in balance, inflammation calmed down, etc., we can request to wean off seizure medication. continuing to see the chiropractor regularly. *whew*

 

i really wonder what these tests would say about my own heavy metal levels, imbalances, etc. maybe someday everyone in our family can be tested. our running total for medical expenses (since 1st seizure in feb.) is close to $28,000. we are looking into personal injury/vaccine lawyer.

 

also interesting to note: the 3rd dose of vaccine she received, just before the 1st seizure was not pentacel (as were her 1st 2 doses), but pediarix, which is DTap, Hep B, Polio. the pentacel is DTap, Hib, Polio. the pediarix contains WAY more aluminum than the pentacel, i need to look into the rest of the ingredients (my brain, ability to research is overwhelmed). i do not recall ever being told that they were switching out one vax for the other. i have a copy of the waiver i signed, the name of the vax was handwritten in, don't know if it was written before or after i signed. it is not super legible either. ugh.

post #33 of 37
When my DS had 2nd Pentacel, 4 weeks later he was diagnoised with the first of 4 ear infections! Then he developed a congested cough that lasted 5 months!!!! Same thing here-I was told " can't be a vaccination reaction." That was the LAST shot he had! Summersmama...I'm so glad you found a doctor that listens. I'm in the process of interviewing for a new one myself, I was discharged from last pedi.!
post #34 of 37
Quote:
Originally Posted by summersmama View Post

update:
after many urine and blood labs, the results are in. my DD has high levels of mercury, lead and cadmium in her body. OMG! scary. she also is very low vitamin d (common for wisconsin), too low zinc/too high copper (supposed to be balanced?), low calcium, low b6, low vitamin c, low carnitine. some of these results are evidence of inflammation in her brain. she also has an overgrowth of fungus/yeast in her intestines, which contributes to high oxalic levels (dr. says result of antibiotics). SO, i am trying to digest, research all this, much of beyond my scope of understanding.
we are adding more supplements, in addition to those she already started (probiotic, omega 3, multivitamin), as well as short course antifungal and carnitine prescriptions.
and the really big news: we are starting a 6 week elimination diet on monday. oh boy. i think this is going to be a big challenge for our family. so i am also researching this like crazy to prepare.
we are including our older DD in this treatment (minus the prescriptions).  also, the dr. is hopeful that once we get our DD in balance, inflammation calmed down, etc., we can request to wean off seizure medication. continuing to see the chiropractor regularly. *whew*

i really wonder what these tests would say about my own heavy metal levels, imbalances, etc. maybe someday everyone in our family can be tested. our running total for medical expenses (since 1st seizure in feb.) is close to $28,000. we are looking into personal injury/vaccine lawyer.

also interesting to note: the 3rd dose of vaccine she received, just before the 1st seizure was not pentacel (as were her 1st 2 doses), but pediarix, which is DTap, Hep B, Polio. the pentacel is DTap, Hib, Polio. the pediarix contains WAY more aluminum than the pentacel, i need to look into the rest of the ingredients (my brain, ability to research is overwhelmed). i do not recall ever being told that they were switching out one vax for the other. i have a copy of the waiver i signed, the name of the vax was handwritten in, don't know if it was written before or after i signed. it is not super legible either. ugh.
Wow, that's terrifying. I can't believe how costly it's been, financially, either! I'm glad you're getting some answers ow, so you can figure out how to treat this. Good luck! Thanks for updating!
post #35 of 37
Quote:
Originally Posted by summersmama View Post

update:

after many urine and blood labs, the results are in. my DD has high levels of mercury, lead and cadmium in her body. OMG! scary. she also is very low vitamin d (common for wisconsin), too low zinc/too high copper (supposed to be balanced?), low calcium, low b6, low vitamin c, low carnitine. some of these results are evidence of inflammation in her brain. she also has an overgrowth of fungus/yeast in her intestines, which contributes to high oxalic levels (dr. says result of antibiotics). SO, i am trying to digest, research all this, much of beyond my scope of understanding.

we are adding more supplements, in addition to those she already started (probiotic, omega 3, multivitamin), as well as short course antifungal and carnitine prescriptions.

and the really big news: we are starting a 6 week elimination diet on monday. oh boy. i think this is going to be a big challenge for our family. so i am also researching this like crazy to prepare.

we are including our older DD in this treatment (minus the prescriptions).  also, the dr. is hopeful that once we get our DD in balance, inflammation calmed down, etc., we can request to wean off seizure medication. continuing to see the chiropractor regularly. *whew*

 

i really wonder what these tests would say about my own heavy metal levels, imbalances, etc. maybe someday everyone in our family can be tested. our running total for medical expenses (since 1st seizure in feb.) is close to $28,000. we are looking into personal injury/vaccine lawyer.

 

also interesting to note: the 3rd dose of vaccine she received, just before the 1st seizure was not pentacel (as were her 1st 2 doses), but pediarix, which is DTap, Hep B, Polio. the pentacel is DTap, Hib, Polio. the pediarix contains WAY more aluminum than the pentacel, i need to look into the rest of the ingredients (my brain, ability to research is overwhelmed). i do not recall ever being told that they were switching out one vax for the other. i have a copy of the waiver i signed, the name of the vax was handwritten in, don't know if it was written before or after i signed. it is not super legible either. ugh.

WOW....so sorry to hear... do you attribute you dd's issues solely to her vaccines?  Have you written any kind of blog about  your experience?

post #36 of 37

Well at least you have somewhere to go from here, and things can only get better by eliminating those chemicals, poor baby!  Have they talked about chelation for the heavy metals?  I know in ND circles it's common treatment for kids on the spectrum and from what I've read it can be very effective as well as the dietary change.  On the off chance of sparing you the full elimination diet - can your doc do testing for specific food sensitivities?  I know with my ND she tested DD at 9mos by having her sit on my lap and I was a chanel for the reaction.  DD held the little glasss vial while I held my arm outstretched and locked - doc would put pressure with one finger and if my arm held, that particular food was not an issue.  If my arm dropped, the food was a problem.  She did the same to test for the specific vaxes that DD reacted to to treat them with specific homeopathic remedies.  Very similar to the technique acupuncturists use to determine blocked energy pathways.  Sounds very hippy-voodoo (that's the term my crunchy chiro used to describe it!) BUT the woman I went to has double checked her results with blood tests and it's never been wrong.  So just food for thought.  Did they at least give you a system for elimination by cutting out the major most common offenders, aka dairy and gluten?  Glad to hear you got answers and you can at least move forward and I'll be sending positive vibes that all goes well and you can wean her from the ep meds!

 

Also on a side note, don't know where you ended up going, but our ND even tests each supplement to be sure the person taking it will get the best one for their body - out of a possible like 10 probiotics, DD only reacted favorably to one! Keep the updates coming!

post #37 of 37
Hey Summersmama. How are things going for your family now? Hope your DD's seizures have lessened or perhaps are gone? How did the diet work for you? Just checking in.
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