30 min seizure after pentacel vax - Page 2

[summersmama]

Jennyanydots, thanks for your kind words and sentiment.

i wish i could go back in time and not allow my daughter get that damn shot. i do think i saved her from more damage by not allowing it when she was just 2 months, 4 months, etc. my older dd got the same shots after she turned 2 and was ok. but not every little body and immune system can handle it. i respect every parent's right to decide what is best for their family, kids. however, my advice, if anyone cares, from here on out is: don't do it.

i may reconsider when vaccinations are made 'green'.
 

[summersmama]

the mayo clinic will not discuss the vaccination as related to DD's epilepsy. i was scolded on the suffering of little ones who get diseases that could have been prevented through vaccination.

my husband and i bought a new video monitor so that we can be sure our 2 year old is safe at night. and maybe that will help us get some sleep, too (maybe, but not likely for this worry wart). our local peds neurologist refuses to give us documentation that the video monitor is a medical expense. (google: SUDEP)

F*#$ all this. i hate all these doctors so much right now. no compassion, no understanding. we are almost $20,000 into this since february. (medical expenses)

going to an integrative DAN doctor next week. we are paying full cost out of pocket as insurance covers nothing. maybe that means he is not a whore for big pharma.

please excuse my language. angry.

[Mirzam]

summersmama, I am so sorry you are dealing with this. Healing vibes to you LO.

[BeckyBird]

I am not surprised the Mayo Clinic has given you this kind of treatment. I've had different family members who were wrongly treated at  both Duke and Johns Hopkins, and I am still having a hard time getting past the anger. Just because an institution is considered to be one of the "best" does not mean it actually is.

Wow, vaccines are only capable of good in this world. They are completely free of blame when it comes to reactions, especially since doctors are so reluctant to hold them responsible for anything except disease eradication. I hate this system so much, and I am so angry for you!

Sorry you are going through this, but hopefully you will find help with a good integrative doctor.

[Marnica]

Originally Posted by summersmama 

the mayo clinic will not discuss the vaccination as related to DD's epilepsy. i was scolded on the suffering of little ones who get diseases that could have been prevented through vaccination.

my husband and i bought a new video monitor so that we can be sure our 2 year old is safe at night. and maybe that will help us get some sleep, too (maybe, but not likely for this worry wart). our local peds neurologist refuses to give us documentation that the video monitor is a medical expense. (google: SUDEP)

F*#$ all this. i hate all these doctors so much right now. no compassion, no understanding. we are almost $20,000 into this since february. (medical expenses)

going to an integrative DAN doctor next week. we are paying full cost out of pocket as insurance covers nothing. maybe that means he is not a whore for big pharma.

please excuse my language. angry.

Sadly your story is fairly typical when it comes to vaccine injury. You are on your own. I am so sorry you have to deal with this with no support from the medical community - and to have a doctor lecture you about diseases? shameful. I hope the DAN doctor will be able to help your LO. and you have every right to be angry!!!!

[g33kch1ck]

i have since revisited the 'pentacel' literature, and indeed they do refer to seizures occurring within 3 days of the vax as a side effect. i find it disconcerting that no one seems interested in this explanation.
 

Just because it's rare doesn't mean it's not happening to your child. Trust your instinct, and keep looking for doctors who will listen to you. We 'fired' our pediatrician for always badgering us about vaccinating our daughter; our current family physician doesn't condescend to us when we say we're skipping a vaccine here or there. Of course, she has three kids, and our pediatrician was childless... 

Somewhat tangential, but a med school friend of mine informed me that med school students consider pediatrics the 'easiest' route to take for a career in medicine. Think about that the next time some pediatrician brushes you off. This was the student at the low end of the curve.

[kathymuggle]

Thinking of you……healing vibes, and a money fairy  

[summersmama]

thank you, everyone. i rant and vent, and thank the universe that there are understanding, empathetic folks.

feeling better, calmer. looking forward to integrative m.d. appointment.

[summersmama]

so happy we went to see the integrative m.d., also a DAN doctor. we had a 2 hour consult with him, where we discussed bacteria, virus, disease, the immune system and vaccines. he shared a lot of research and most important, he LISTENED to our story. he validated our experience. he talked of the many mothers and fathers who walk through his doors with similar stories, about how their children were just fine, and then a vaccination...

he told us we were in all likelihood lucky that we had not allowed more shots at a younger age for our DD.

so now we are doing a battery of lab tests, urine and blood, checking for everything that might be useful or problematic, depending upon your perspective. we will have to wait a few weeks for all the results to come in, at which time we will have another consult and a treatment plan will be outlined.

overall i was very impressed with his knowledge, and also his humility. he knew his stuff, but was quick to point out that no doctor is god, no doctor can guarantee that a vaccination or medication or treatment is safe for everyone. he encouraged me to read and research, advocate for my child and follow my instincts.

Edited by summersmama - 5/19/13 at 9:13pm

[Jennyanydots]

That's awesome, summersmama! I'm so glad you found a good dr you can talk to who will actually hear what you're saying without dismissing you. I hope he's able to provide some help and offer some good healing therapy.

[Magali]

Originally Posted by summersmama 

so happy we went to see the integrative m.d., also a DAN doctor. we had a 2 hour consult with him, where we discussed bacteria, virus, disease, the immune system and vaccines. he shared a lot of research and most important, he LISTENED to our story. he validated our experience. he talked of the many mothers and fathers who walk through his doors with similar stories, about how their children were just fine, and then a vaccination...

he told us we were in all likelihood lucky that we had not allowed more shots at a younger age for our DD.

so now we are doing a battery of lab tests, urine and blood, checking for everything that might be useful or problematic, depending upon your perspective. we will have to wait a few weeks for all the results to come in, at which time we will have another consult and a treatment plan will be outlined.

overall i was very impressed with his knowledge, and also his humility. he knew his stuff, but was quick to point out that no doctor is god, no doctor can guarantee that a vaccination or medication or treatment is safe for everyone. he encouraged me to read and research, advocate for my child and follow my instincts.

Great!