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Trismus Pseudo-Camptodactyly Syndrome

post #1 of 2
Thread Starter 

my 2 year old son has this genetic disorder it is extremely rare and he is going to have a heel cord and hamstring lengthening done in April. I'm extremely nervous about this and I wanted to get some advice on the surgery, healing time, pain control, etc...thanks so much.

 

 

 

 

p.s. I would love to find mothers with children affected by this syndrome

post #2 of 2
No advice, only good wishes. <3
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