Further information on B-12 issueJust Wondering, We have doe extensive research into this issue of how b-12 deficiences occur. We have spoken to doctors around the country and found numerous research papers at the Emory Medical library. We have consulted varied nutritionists and have found an incredibly diverse range of opinions as you might suspect.
We have taken all the pieces of this puzzle together and modified our diets and added numerous supplements. I have added occasional salmon to my diet and no longer consider myself a member of one eating cult. I do continue to eat the bulk of my food in its whole form and we do not consume any thing with additives or anything that has been radically processed.
I have three other children who all seemed to thrive on a vegetarian diet for years. The oldest is 11. My 6 year old was exclusively vegetarian for 4 years. They all consume animal foods occassionally now.
Mia eats fish once a week (occassionaly in high grade sushi form), red meat once a month, and turkey and chicken every other week. She is not eating dairy, wheat, or legumes and nuts at this point because we suspect they played a part in the hives and siezures she had last year. She eats a wide range of organic fruits and vegetables both raw and cooked. She takes a DHA supplement, Omega oils, Sublingual B-12, a multivitamin, and acidopilus regularly and several things more intermittently.
She went from being a tired baby with suspected anemia to a diagnosis of severe B-12 def. and macrocytic anemia ( No apparent folic acid issue). Her iron was also low. We initally gave her 2 shots of B-12 which turned her into a sleepless hyper baby and then eventually as treatment continued she started having a persisent arm tremor and siezures. It was recommended that we put her on pheno. But we did not and were threatened with social services for declining to follow doctors orders. She has had no siezures since Decmeber when her b-12 levels finally went down form their astronomical levels to a more normal reading. We stopped shots after the fifth one. She was tested for genetic issues and for intrinsic factor problems and none were revealed. I was tested for prenicious anemia and blood abnormalities and all was normal. However, I have read that this can be the case and still I could be passing insufficient B-12 through my milk and even in utero.
After a month of "in and out of the hospital" for various complications, Mia was not able to move, or sit up, smile or babble. It was awful. We have worked with her and had therapy both nutritionally and physically. She has made amazing progress. Currently she has speech, occupational, and physical therapy three times a week outside of what we do at home. We are looking into starting a more intensive speech therapy program for her involving specific drills. She has no words at 2 years and 3 mos old. She does understand two step requests.
She is an avid climber and has great balance.
The other child we know here with this issue is not speaking at four years old. This is why we have decided to pick up the pace or her therapy. His mother was diagnosed with pernicious anemia
and she was a strict vegan.
At this point we just want to get the word out about how critical nutrition is. I do not claim to have the exclusive anwers in that area and I have not encountered anyone who I feel does. As so much else in life it appears to be an individual issue. But taken all together we can do our best as parents to avoid these kinds of problems. It is all about knowledge, intent, and balance. I do want to say though that I strongly encourage B-12, folic acid, iron and Vit. C supplementation for all pregnant and nursing moms. This, of course, comes from my personal experiences.
We also want to find out if there are other parents out there who have faced this issue and what steps they have taken.
Thanks for taking the time to reply and I will look up the references that you pointed out. Also, I love to hear more detail on what yoy faced with your baby.