So DS1's annual meeting is this Friday. I am so dreading it. He is turning 4. We have a private dx of PDD-NOS that is from an excellent Children's Hospital that we traveled to several times for him, and I very much trust that is is correct. His IEP is written only for cognitive and speech delays. He receives one hour a week of group speech therapy, one hour a week of special ed, and one hour every other week of OT. They also pay for two days of his private preschool as there is no public preschools for children his age here.
Services here are severely lacking. It is very rural and they sort of do things their own way, regardless of laws. Quality professionals do not work for the school district, the couple of them that do exist here are in private practice. We do a lot of private therapy as well. I pressed last year to have his IEP amended to include PDD-NOS and was told that is a medical dx only, not an educational one. His goals for his speech delay have been meet, I am fully expecting to walk in there and be told that his services are getting cut. I provided them with copies of his evals from the hospital, never heard anything. I rarely get progress reports, the therapists frequently skip days or come during other times or change all together on me. Sometimes I get notified, often not. I've fought these people for years between DS1 and then my oldest child, I am not on their good side, and I don't care, I just want services but they definitely have a bone with me now.
I want PDD-NOS in his IEP. he doesn't just have a speech delay and it should address that. DS1 is doing well with communication, he has made great progress this year. Socially he is really lagging though. He does AMAZING in therapy type settings, does ok with adults, put him in a group of kids and he is sitting by himself playing with the same car. The therapists know I want this worked on and just now I'm (finally) getting progress reports about how much eye contact he made, how many times he talked to another child, etc... And the PK teacher is not on my side. We have a long history as well, she is very good with DS1, but we do not get along personally nor will she be the teacher next year either, that is currently a unknown. She insists that he is fine with other kids. I am in and out of the classroom constantly and I beg to differ. Nor does that match up with anything that he does outside of school either. Needless to say, I fully expect this will be a me against everyone else type of meeting.
I don't know what I'm looking for. Any suggestions or even hand holding would be welcome.