my little one has not had any more seizures since her big #2 incident at the end of march. her sleepiness has gotten better after a week or so on the meds. i would say that she seems more clingy/whiny and sometimes she seems overly hyper. but no more seizures.
we had our first follow up with local peds neurology. she had an eeg that still shows slowing in the anterior right temporal lobe. this has been bothering me, a lot. the dr. thinks she is doing quite well, very normal activity, skills for her age, and doesn't seem very concerned. just wait and see, the dr. tells us. when i brought up the insanely high amounts of aluminum in the vaccine, and asked what this aluminum could do to her brain, she did a total side-step, 'you need to vaccinate your child' dog and pony show. i told her i didn't want to debate, i just wanted to know what the aluminum could do. no answer was given.
we go to the mayo clinic next week for a 2nd opinion. i have 2 more pages of NEW questions to ask when we go there. the more i research and read, the more questions i have. i want to know more about that focal area where the activity is happening. i want a heavy metals test done on her, and i want to have a CONVERSATION on the vaccine issue. i don't want a debate, i just want to ask a few questions and not be scolded or laughed at or treated like a nutjob.
most days i continue to be pretty upset about all this. i feel very uncomfortable not knowing, not controlling the situation. will she deteriorate with this continued focal slowing, as the abnormal eeg shows? what will be the manifestation?
i am also realizing that i need to find a way to accept the reality of this, as the more i argue and fight what is (in my own head), the more exhausted and stressed and in pain i find myself. no matter what i love her dearly. it is what is happening. i am angry and upset, but i need to find some peace so i can rest and be a good mom.
peace to you and your ds. it is nice to hear that a training may be held for his teachers. i can't imagine sending mine off to school right now. i am so on edge about taking my eyes off her for one second.