I just received my diagnosis today... I am a bit confused and troubled by this, as I know that EBV is linked to a higher incidence of other health problems, like MS and lymphoma.
I noticed in early September 2012 that I had a REALLY swollen lymph node (about the size of a golf ball) above my left clavicle, but when I looked up swollen lymph nodes online it sounded waiting a few weeks before seeking treatment can be a good idea as the swelling can resolve on its own. I had experienced the worst cat scratch of my life about a month before noticing the swelling, so I figured cat scratch fever, which normally resolves without treatment.
During this 2 week waiting period, DH's internship (with good insurance) ended and we moved about 250 miles with no help and a toddler. I put it on the back burner.
Later, when I noticed that the lymph node on the right side was also enlarged and the left was no smaller there was no extra money for a trip to the doctor.
DH is done with school now and working so off to the doctor I went, and due to the fact that I am pregnant I was required to have a few blood tests done (they would have given me antibiotics to start with otherwise) and I am negative for cat scratch disease, but apparently positive for Epstein Barr and a high white blood cell count.
I had mono when I was 15, so this has to be a reactivation. I've had chronic fatigue for about 4 years now, but until this I've gone along with the crap people have said when I've mentioned my exhaustion. "Oh, you've gained some weight recently, it must just be that." or "Of course you're tired, you're pregnant." or "You have a newborn, everyone knows that's tiring." I stopped talking about it when DS was a few months old. No one seemed to care and I had enough to deal with trying to stay awake during the day.
I'm looking for stories of other cases of EBV (reactivation). I'd love to know if it resolved (and what you think helped with that), and if not, how has it affected your life? Have you been diagnosed with anything worse since then? Anyone have swollen lymph nodes with a reactivation of EBV? If yes, how was that resolved?
Thank you, my head is kind of spinning right now. I really need some real life info about this, rather than pure medical mumbo-jumbo.