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Cope with work and parening a child with seizures

post #1 of 4
Thread Starter 

Am a mum of child with uncontrolled seizures.

I left my job because of our child but now am trying to get back to work.

Doing 3rd or 2nd shift will help me in working and be available in the morning for our child

especially if she is in school, I can get a call anytime to pick her up due to seizures.

It is hard to find 2nd or 3rd shift due to my type of profession, I can get the shift but it takes time. As a matter of fact I have worked several night shifts before and they come to an end unexpectedly.

 

The question is, are there private care or organizations that can be there for our child in the morning if I

 

work first shift ? I am located in USA

 

I look forward  to responses, thanks.


Edited by chor - 6/4/13 at 7:11am
post #2 of 4

Not sure where you are at, but it looks like maybe outside the US.  So sorry your dd and yourself have to deal with uncontrolled seizures.  I would start with talking to your daughter's neurologist/epileptologist about services that there office might be aware of.  I would also try to find your local/regional epilepsy foundation.  I realize that some chapters/groups are more active than others.  If they have a director, then they will likely know of more resources, but if not, go to support group meetings to try to find people with experience or knowledge in your area.  Keep asking everyone- even ask at your dd's school.  Ask about respite care.   

post #3 of 4
Thread Starter 

Hi and thanks for your response.

 

Will keep asking. I am in USA, I have edited my post to indicate that.

 

In the past, when I once asked they said she did not have a worse condition like using tube to feed hence she may not qualify.

post #4 of 4

Since you are in the US, I really think finding the person heading up your local Epilepsy Foundation will be the best for local/state resources.  Requirements for respite care can very from area to area; here the one that I am familiar with requires that the primary care giver does not work.  Sometimes it is offered through Epilepsy Foundation.  

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